Ethan’s Journey

This afternoon Paul and I had a phone call meeting with the doctor assigned to Ethan’s case while he is in NYC.   https://www.columbiadoctors.org/irene-d-lytrivi-md Apparently there are 6 doctors and 5 PA's (or was it the other way around?) and they all work together as a team for each patient.  I feel it went well.  They gave us a little bit of information about the transplant program and we discussed setting up a time to get Ethan there for an evaluation.  Their evaluation (unlike Pittsburgh) will only take 2 days. Obviously we will have to allot for travel in there. Here is the bright side.  Paul can go! They will allow both parents for the evaluation and transplant surgery, but only one parent can be with him while he is in the hospital. The Ronald McDonald house is closed, so that is a bummer.  It would have been helpful for us to be able to stay there but once again STUPID COVID strikes and screws us again.  They said that Columbia Medical Center is close to the George Washin