Last night was not very restful. I am very thankful to be home. The constant alarms going off and bed checks only allowed sleeping periods of 20 minutes at a time. This morning was busy. During rounds, Ethan’s team of 9, yes 9 people gathered to discuss his case with me. Each one with their own computer, it was a sight. It was nice to be included within the team and I was able to mostly follow along. Ethan came back with a positive infection for Epstein Barr Virus 🦠. This is good because this means if he does get a heart from someone who has had it in the past, his immune system will be more equipped to deal with it. Apparently it is VERY common and a lot of people have no symptoms at all. His repeat echo showed that while his heart is still failing, he is trudging along. The doctors are taking his Pro-BNP numbers seriously. Pro-BNP is a test that measures peptides made by the heart. Normally only small levels are present in the bloodstream. High levels indicate your heart is
This is our family's story of Ethan's heart transplant journey