You get the jist of the picture. It is a little smushed. Oops. 2020 has been a crazy year. EVERYONE will agree on that as everyone has had their own hardships to deal with. One of our hardships was to get Ethan's health insurance to cover him going for evaluation. When we started entertaining the idea in April that we were headed in the direction of transplant, we were told to choose a children's hospital. The criteria given that we should base our choice on was reputation, proximity and to consider the allotment of hearts. We were originally told that each hospital gets their allotment of hearts within a 500 mile radius of the hospital. Hospital's that were closer to the ocean had less of a pool of available hearts. Due to reputation, location and the fact that Pittsburgh had a 500 mile radius of living people the entire circumference, it only seemed like an appropriate fit. We moved forward and had the evaluation set up for the second week of July. Wow! things w
This is our family's story of Ethan's heart transplant journey