Ethan’s Journey

​this morning Paul was peeking at someone at the end of their dock. We were trying to figure out who the person was. “You can’t just use binoculars and become a peeping Paul on the shoreline They can see you.  It looks weird!” I said. “What else are binoculars for?” He asked. “Unbelievable! You look like a creep.” I chastised  This moment was brought to you by Sarah. Turns out, they weren’t even Paul’s binoculars. They were the neighbor’s. The neighbor recognized them and asked for them back after seeing our Facebook post…..hilarious! Klepto Paul! We went out on the boat and went swimming for a while. The water really warms up in the afternoon.  Sarah and John’s daughter, Brooke,  and boyfriend went out on the paddle boards. We then decided tubing was a good idea.  Sarah, Brooke and myself went tubing. I was nervous but Paul promised to go slow. The three of us were on the tube. Things were going fine for the first minute and a half. Then Sarah fell off. We circ...

​Sarah and John were providing pork for dinner. Sarah told John that if the pork he prepared for dinner was bad, they were never going to be allowed to come back. “That’s a lot of pressure.” John said. There were all sorts of jokes about John preparing his meat for dinner. Immaturity at its best! A while back, Moe got into some donuts and devoured 6 large donuts…besides a sugar high, he didn’t have any intestinal upset. We were grateful he didn’t. These donuts showed up this weekend. Moe did NOT help himself. One time in a row. We went out on the boat which is fun. Sarah and I floated on Diane’s tube. We floated and stayed cool without being totally submerged. We were not graceful getting into in and I am glad no one has a video. We did suffer some heckling from those passengers on the boat. It didn’t bruise our egos at all though. Sarah took her dogs out on the paddle board. They were both with her. I want to try this with Penny but  I am note sure if she will panic. We ate dinner...

​I talked to Avery today. She had me cracking up.  We talked about ridiculous things and laughed about them. Paul arrived this morning. The dogs were so happy to see him. He had to sit on the couch with them for a little bit just so they could all sit on his lap at the same time. Work seemed to snowball into a mess. It casted its web in my day. It is a good feeling to snap the computer shut on a Friday afternoon. Sarah and John arrived with their dogs. I took Moe, Jiminy and Penny for a walk up the road. Ferguson was sleeping. Penny was barking so much at Sarah’s dog that she earned herself a sedative snack. Moe and Jiminy walked nicely with Sarah’s two dogs. Everyone minded their business and got along well. Yay! Today was work frustrations sprinkled with communications from the transplant team and social services. Ethan’s blood pressure is creeping up which is a side effect of one of his medications. His team increased his dose of blood pressure medicine.  He also had a chan...

​ I think about all the hellish mornings spent trying to be the first one to the shower to reduce the amount of hair found in the drain at the hospital. Just wanting a clean-ish shower. Worrying that if I wasn’t the first person, the air could be contaminated as I removed my mask for 15 minutes a day to clean myself. Worrying I might bring Covid back to my healing kid. My morning now is so much better. I told Avery for years I wanted a remote job for my sanity. I feel like I have hit the jackpot. I enjoy work. I enjoy it even more with a beautiful and peaceful office. I am so grateful. Ethan made a YouTube video where he shared his feelings about how things have gone for him the past 6 years. His constant stress about his health, the constant worry he isn’t as far along as he would like to be…. While I don’t love his excessive use of the F  word, he expressed how he feels and the challenges he has faced from his perspective. https://youtu.be/hj4Usa_yxTk?is=1KPVGei12-we_tFs He recog...

​My friends are funny! This morning I had a friend reach out saying that she, like Moe yesterday, was airing out her crotch. She also works from home and said “Business from the neck up and party on the bottom.” This made me laugh. I appreciated the laugh and the cleverness! I do appreciate silly humor. Can you imagine if people acted like dogs? “Hey how are you doing? Can I smell your butt?” Ridiculous! But my immature humor laughs at the thought. Or can you imagine just dropping your butt and dragging it across someone’s floor? Mid conversation, dropping trousers and scooting? Ha! Gross! It was SO windy today. Poor Jiminy was not impressed with walking in the wind. It was 22 miles per hour and I am sure it felt like hurricanes strength to him. I had some light sprinkle off and on but not much. The wind was more problematic. The wind rearranged the brush pile I had stacked neatly. I had taken the branches I cut off and piled them neatly by the fire pit. Tomorrow I will have to re-stac...

​The geese were ballsy today. This is my current drama. I sent Penny out to chase them off of our property. She did a great job! Good girl Penny! No sheets or rape whistles needed ha ha! The weather was a little stormy today. I enjoyed the few rumbles of thunder we had but most weather seemed to go “up the river” and miss us. We had off and on rain but plenty of time for the dogs to walk up the road. I was finally able to look up the information Ethan’s heart team was looking for in my blog. They were seeing a spot of non-movement in his heart that was concerning but after discussing things with them, it appears to be residual from Ethan’s stroke and clots in his heart after transplant.  I can’t remember all the details and was thankful to my 2020 self for doing this. I made a large pot of spaghetti that I plan to nibble on over the next few days. Some of the meals went in the freezer. Moe had silliness in his bones today. He was sleeping soundly with his legs spread open. He was a...