I got a call today from the Transplant center (cardiac). It was Ethan’s NP. We really like her. She and Ethan’s doctor were chatting about him and she shared how Ethan’s kidney values took a huge nose dive when they switched his cholesterol medication. She shared with him how we weren’t surprised and how Ethan has such wonky reactions to things. She reiterated how Ethan just doesn’t follow the medical rules. After some brainstorming, Ethan’s doctor wants Ethan to get more genetic testing done. Specifically to look at his FLNC variant. I am not really a whiz with genetic testing, but this variant can give them more information on his genetics to help them guide Ethan’s care for the future as well as be able to help give them more information. He had this testing done 6 years ago. At that time it was determined that he was an anomaly and that his heart issues were not passed along through family genetics. In the past 6 years they have made advancements that help give the doctors inf...
It’s that time of year. I am feeling cooped up and want to travel. Only a month until our Bahamas trip and I am ready! We watched the Daytona 500 this afternoon. I use that term lightly. I was working while the race was on and enjoyed watching the crash replays. I did enjoy listening to Paul and Ethan discussing the race. I looked for my nephew but didn’t see him. He works for RFK racing. Afterward, the news came on because we were too lazy to change it. We never have the news on because, frankly, it is a mess out there and ignorance is bliss. The lady that was presenting the news was good at rapid firing information as us. She was doing it well. She had it just rolling off her tongue in such a natural way. “Do you think that lady has had Botox?” Ethan asked. I looked up from my computer and the reporter had on a blindingly neon pink shirt. Her eyes were huge like she was surprised, but that was just her face. Her eyes were huge! She couldn’t move her eyebrows. “Oh my gosh, I thin...