I talked to Avery today. She had me cracking up. We talked about ridiculous things and laughed about them. Paul arrived this morning. The dogs were so happy to see him. He had to sit on the couch with them for a little bit just so they could all sit on his lap at the same time. Work seemed to snowball into a mess. It casted its web in my day. It is a good feeling to snap the computer shut on a Friday afternoon. Sarah and John arrived with their dogs. I took Moe, Jiminy and Penny for a walk up the road. Ferguson was sleeping. Penny was barking so much at Sarah’s dog that she earned herself a sedative snack. Moe and Jiminy walked nicely with Sarah’s two dogs. Everyone minded their business and got along well. Yay! Today was work frustrations sprinkled with communications from the transplant team and social services. Ethan’s blood pressure is creeping up which is a side effect of one of his medications. His team increased his dose of blood pressure medicine. He also had a chan...
I think about all the hellish mornings spent trying to be the first one to the shower to reduce the amount of hair found in the drain at the hospital. Just wanting a clean-ish shower. Worrying that if I wasn’t the first person, the air could be contaminated as I removed my mask for 15 minutes a day to clean myself. Worrying I might bring Covid back to my healing kid. My morning now is so much better. I told Avery for years I wanted a remote job for my sanity. I feel like I have hit the jackpot. I enjoy work. I enjoy it even more with a beautiful and peaceful office. I am so grateful. Ethan made a YouTube video where he shared his feelings about how things have gone for him the past 6 years. His constant stress about his health, the constant worry he isn’t as far along as he would like to be…. While I don’t love his excessive use of the F word, he expressed how he feels and the challenges he has faced from his perspective. https://youtu.be/hj4Usa_yxTk?is=1KPVGei12-we_tFs He recog...