Ethan’s Journey

​when you were 23, did you have to take your blood pressure regularly to share with your doctor? Ethan does.  He also had the pleasure (sarcastic) of worrying about needing his medications and not being able to get them yet. I had to call the pharmacy to explain what was going on, have them order the medications because they are too expensive to keep in stock. We do this each time he needs a refill of his medications. They order them and they arrive the next day. My pharmacy lady is amazing! She is so helpful and makes us feel like she cares.  I shared with her that we were told by Wednesday we would have an insurance subscriber number. She ran his meds through insurance anyway. It came back that he is active in the system, meaning he was back in business with his insurance. Woo hoo! We also got a message from the doctor today to get Ethan’s blood pressure. We have a machine at home. Ethan has to take it by himself and report it. I had a leisurely day even though I was working...

​it was a pleasurably Sunday. It was breezy but the sunshine kept us warm.  We puttered around, the dogs went on a few walks, chased away some geese, and enjoyed the warmth. I talked Paul into going to Wilson bay. We grabbed a few pretty and red rocks.we drove over there instead of boating. We like to get decorative reddish rocks and park them around camp because when it rains, they look really vibrant. We ended up taking the jet ski’s over to the island and hanging out. The island blocks any wind and allows the sun to be hot, so that cooling off feels good. We came back and ate leftovers. Since it was a bit windy, we sat outside listening to music with the dogs, but didn’t have a campfire.  It was a pleasant evening.

​This morning, the weather seemed “iffy”. It looked like rain was on the way according to the weather app. Luckily we had the benefit of the St. Lawrence Valley Channel. This makes it look like storms are headed our way, but the bypass is and travel up the St. Lawrence River. The river valley acts like a conduit steering the weather up the river.  A storm blew right by us with about 3 minutes of sprinkles. The dogs got several walks (as did I). Moe was a bit stinky so he got a lake bath and happily dried off in the sunshine. Paul and I took the jet ski’s out. We parked them close to shore and swam out to our neighbor’s boat. We enjoyed the still water and sunshine. We had a brief sprinkle and it passed. The water was warm enough to be able to jump in and not have such a cold shock where you flirt with a seizure. That might be dramatic but sometimes it is shockingly cold. We had a leisurely dinner and settled in for a fire. We watched the storms and rain going up St. Lawrence Valley...

​I woke up early this morning to drive to camp. I arrived around 8:30 am. Morning drives has so much less traffic. I did my work and shimmied in a few dog walks too.  I called the insurance company, as directed, and they said to not expect a number assigned to Ethan for insurance for at least another 5 days.  I was hoping what the lady said yesterday was true. If I could get Ethan’s number, we could provide it to the pharmacy to get his meds shipped. Darn! I tried. My Aunt and Uncle and myself went out to dinner at a local restaurant. It was quite busy, but then again, it was Friday night. We got seated quickly but I think our waitress was overwhelmed. She was not even half as good as the waitress the other night. Our meal was excellent. I also didn’t even have to make it and that somehow made it  more delicious. Paul had arrived by the time we got back to camp. We ended up have a nice fire. The lake was calm with very little breeze.  This is why we work so hard. Wor...

​After work today Avery and I drove to the Cheesecake Factory for my birthday dinner. We met my in-laws there.  Avery ordered an alcoholic beverage off the menu. My little adult baby. ❤️ Paul was mad that he forgot his reading glasses. He hates that he needs them and refuses to bring them in places that require him to read. He hasn’t accepted that this is a normal aging process and it is ok. He told me I was going to have to read him the menu. I started reading it to him and he became annoyed with that. He suffered through squinting and adjusting the length of the menu. Avery got a picture of him pouting about his eyesight while trying to read. She said his face stayed like that the entire time her read the menu. Our meals came and were delicious. Our waitress was amazing. She anticipated needs excellently, forgot nothing and was very personable. She also had a wonderful sense of style with the cutest phone cover and brilliantly artistic nails.  I put in a positive review for ...

​We got a letter in the mail yesterday dated 7/28/26 stating Ethan’s health care coverage ended on 7/31/26. Cool. Nothing like giving us a heads up. We need to refill some of Ethan’s medications. So it is kind of important. This is not the first time we have been in this situation. I call the number on the letter we received. I explained the letter and that he no longer had insurance. She told me he can’t apply for insurance because it wasn’t open enrollment and followed it with “is there anything else I can help you with?” Anything else you can help me with? You didn’t help me with anything. “Because his insurance has ended, doesn’t that count as a qualifying event?” I asked, knowing full well it did. “Yes.” Then there were crickets. I allowed her a moment to process. “He can go to the NYS website and plans start as low as $600/month.” That is more than he makes in a week. He certainly won’t be able to sustain paying for this. I started asking more questions and was transferred to som...