Ethan’s Journey

 Paul called and wondered if I had any back up boxes of wine. With my previous “emergency wine” purchases, we were able to avoid a wine crisis….all done from a different state. #wifewin I slept terrible again last night. It is stormy in Virginia and I had a low level headache all night. The kind Tylenol doesn’t touch.  I believe it was a mix of bad sleep Wednesday night, traveling and weather/ allergic headache. This conference is SSSSSLLLLLLLOOOOOOOWWWWWWW!! There isn’t much traffic. However, the bright side is that I have gotten some interesting feedback to share with my leadership team. I also have been asking questions to my recruiter partner and learning a few things. I see value in that.  Today was in the mid 60’s. I was only outside for a brief time, but it felt good.  I am tired and have one more day to survive. Hope I can sleep tonight.

  Flying is always an experience. I had a relaxing middle of the day flight. I was through security in 6 minutes.  I had forgotten that I was not on a direct flight. I went to the gate and was like…why is this plane going to Washington DC. Whatever! I figured it out. As long as I know the plan and where to be, I was not going to get lost in the details. I remembered the important stuff, like what to pack and when to arrive at the airport. The flight attendant had a bit of an attitude, but it was warranted. 3 people were talking on their phones during the safety announcement. He stopped the announcement 4 times to ask them to stop. “you can finish that call from the terminal if you don’t end your call now.” Just follow the rules people! My nose is over active. The first plane was a mix of halitosis, oily skin, and dirty laundry. Not farts! That’s good, but the smell was still unpleasant. My face was also unpleasant as it was twisted up in mild disgust. The first flight was turb...

 I had a series of frustrating work events that led me to wonder if I was being secretly filmed. The absurdity of conversations I had were a bit unbelievable. I had one guy in tears on a video call. It wasn’t due to anything I said. It just happened. I was not emotionally ready to talk him through it. We got through it.  Ethan got home from work today and wondered if I could do a hair cut on him. He quickly changed his mind and said he would wait until Sunday. He then paused and asked me when I was going to get home on Sunday.  “I should be home by 4 pm.” I said “ Let’s do the haircut today, because you will probably be tired on Sunday.” He said soooo thoughtfully. We settled on today because he is right. I will likely be tired and cranky. He doesn’t want cranky Mom with a weapon near his face. Good plan! This kid has only gotten his hair cut by a barber once. Every other haircut I have given him. I channel my previous years of dog grooming, and apply it. If you have seen...

 Ethan and I got into a conversation about geothermal heating and cooling. He expressed interest in this and learning more about it. With the little I know about it, I explained that it was A system of pipes that circulate a water antifreeze mixture Deep underground in the winter, it extract heat from the Earth to warm the building in in the summer it reverses the process, transferring heat from the building back into the Earth.  I only know this because Paul and I had a conversation about it a few weeks ago and I had zero understanding and did a small bit of reading. It is supposed to save energy costs.  I told Ethan to start researching grants to cover the cost of this and I would help him apply. Writing isn’t his strong suit (mine either but between the two of us it might be ok). He also expressed interest in solar panels on his roof. He is not pleased with all of the stuff going on with high energy bills in the area. He grumped about it being a monopoly. He told me th...

I got a call today from the Transplant center (cardiac). It was Ethan’s NP. We really like her. She and Ethan’s doctor were chatting about him and she shared how Ethan’s kidney values took a huge nose dive when they switched his cholesterol medication. She shared with him how we weren’t surprised and how Ethan has such wonky reactions to things. She reiterated how Ethan just doesn’t follow the medical rules. After some brainstorming, Ethan’s doctor wants Ethan to get more genetic testing done. Specifically to look at his FLNC variant.  I am not really a whiz with genetic testing, but this variant can give them more information on his genetics to help them guide Ethan’s care for the future as well as be able to help give them more information. He had this testing done 6 years ago. At that time it was determined that he was an anomaly and that his heart issues were not passed along through family genetics. In the past 6 years they have made advancements that help give the doctors inf...

 It’s that time of year. I am feeling cooped up and want to travel. Only a month until our Bahamas trip and I am ready! We watched the Daytona 500 this afternoon. I use that term lightly. I was working while the race was on and enjoyed watching the crash replays. I did enjoy listening to Paul and Ethan discussing the race. I looked for my nephew but didn’t see him. He works for RFK racing. Afterward, the news came on because we were too lazy to change it. We never have the news on because, frankly, it is a mess out there and ignorance is bliss. The lady that was presenting the news was good at rapid firing information as us. She was doing it well. She had it just rolling off her tongue in such a natural way. “Do you think that lady has had Botox?” Ethan asked. I looked up from my computer and the reporter had on a blindingly neon pink shirt. Her eyes were huge like she was surprised, but that was just her face. Her eyes were huge! She couldn’t move her eyebrows. “Oh my gosh, I thin...