Ethan’s Journey

I got a call today from the Transplant center (cardiac). It was Ethan’s NP. We really like her. She and Ethan’s doctor were chatting about him and she shared how Ethan’s kidney values took a huge nose dive when they switched his cholesterol medication. She shared with him how we weren’t surprised and how Ethan has such wonky reactions to things. She reiterated how Ethan just doesn’t follow the medical rules. After some brainstorming, Ethan’s doctor wants Ethan to get more genetic testing done. Specifically to look at his FLNC variant.  I am not really a whiz with genetic testing, but this variant can give them more information on his genetics to help them guide Ethan’s care for the future as well as be able to help give them more information. He had this testing done 6 years ago. At that time it was determined that he was an anomaly and that his heart issues were not passed along through family genetics. In the past 6 years they have made advancements that help give the doctors inf...

 It’s that time of year. I am feeling cooped up and want to travel. Only a month until our Bahamas trip and I am ready! We watched the Daytona 500 this afternoon. I use that term lightly. I was working while the race was on and enjoyed watching the crash replays. I did enjoy listening to Paul and Ethan discussing the race. I looked for my nephew but didn’t see him. He works for RFK racing. Afterward, the news came on because we were too lazy to change it. We never have the news on because, frankly, it is a mess out there and ignorance is bliss. The lady that was presenting the news was good at rapid firing information as us. She was doing it well. She had it just rolling off her tongue in such a natural way. “Do you think that lady has had Botox?” Ethan asked. I looked up from my computer and the reporter had on a blindingly neon pink shirt. Her eyes were huge like she was surprised, but that was just her face. Her eyes were huge! She couldn’t move her eyebrows. “Oh my gosh, I thin...

 Paul was off snowmobiling today and I had the day to myself. I had a good chat with Mom and then was off to clean and meal prep.  After that was completed, all 4 pups got their spa day. Baths and warm up by the fire while they dried. I like them to dry and not be cold. I remember how much Moe used to fight me on baths. Now he is a perfect gentleman.  He does wear an annoyed face while in the bath. I can live with that. I even was able to brush all of them afterward to get the loose hair out. I am not sure what I would do with my time without dogs. Ha! I know I give them tubby time more than most dogs get. I just don’t want the gamey dander smell in the house.  Everyone got fresh beds maid including me! I love a nice fresh bed with good smelling linens. Ethan rode the snowmobile around the field for a while. It is fun to see him having fun and doing normal things. I consider it exercise for him because it can feel like a workout trying to stear those things. Ethan an...

 I was doing some light Friday evening about colorectal cancer, (isn’t this normal?) and got to the part where they started talking about symptoms. I wanted to update my knowledge due to the recent passing of James Vander Beek. I started reading through the symptoms and instead of using the word “gas” they used the word “trapped wind”. Who is writing this article? Trapped wind? I have never called it that nor have I ever heard anyone else call it that.  Guess who is making a point to say the phrase “trapped wind” from now on.  When the wind becomes untrapped….what is the phrase for that? My brain was tired today. I really had to motivate to finish up the work day. I had a quiet evening coming up with a trip for a few gal friends. Oddly, this is relaxing. I was trying to figure out a budget, find a place to stay on the beach. I want to be able to present a budget and then come up with travel dates for 2027. The whole time I tried to feel the sun warming my skin. I was tryi...

 I volunteered to moderate the chat in a Virtual event tonight. Traditionally, we have these events on Teams, but tonight we used Zoom as the platform. My role was to answer questions, drop in an email address here and there and keep an eye on things. I answered all the questions as they came. 3/4 of the way through, the other moderator shared that my answers were only going to him and the host. Ugh! Rookie move! I thought of the old Ex-Lax commercial “smooth move, Ex-Lax!” Oh well! I made up for it with my winning personality.

 After work, Paul set up for he and our friends to snowmobile to a restaurant and I could drive and meet them. I thought that was nice to be included. I don’t mind that I can’t snowmobile. It used to bother me that my back limited me. I have accepted it now. There were six of us that chatted and hung out. We had some dinner and then afterward, they continued to ride and I went home. I was happy with that.  It was nice because it wasn’t too crowded. The people that were there weren’t excessively coughing into their hand and then touching things or being gross. Perfect! I love it like that. It was a wonderful time. Laughs shared. I had forgotten my purse. I realized it when I got into the parking lot. My key to my van was in there. I had done remote start and wondered if I would need to call Ethan to bring me my purse to get home. Turns out, I had a key in my pocket. Crisis averted! Paul was the sugar daddy tonight! He paid for everything…..from our joint account. Ha!