I woke up this morning and checked on Ethan. He said he slept through the night and felt well enough to go to work! Yay! He stomach was still a little out of sorts but improving. The bland diet is helping. He continued with it all through today but is quite sick of it already. More tests came back. Negative for the nasty viruses that transplant patients can get. Rejection medication numbers were within the range they want him to be. The swirling and twirling anxiety subsided for me. Ethan is supposed to get an MRI next month with contrast. We are meeting with the nephrologist to see if that will be ok. Ethan’s GFR is down to 36. Normal is above 90. They stop giving contrast to patients with a GFR below 30. We are getting close. 😬 The MRI is to get specific images of his heart and will be important to have a baseline. So fingers crossed. Ethan laid low after work. He ate his bland diet. He did participate in the conversation. He was even crackingPaul and I up. Paul had to ma...
Ethan was up in the night with more stomach upset. This time he was nauseous and feeling like he was going to vomit. I sent a communication to the transplant team and tentatively scheduled an urgent care appointment. Ethan chose to call out sick which he has never done. Not even with his pneumonia’s. Yesterday he said “NO URGENT CARE” today he is waving the white flag. I am proud of him for recognizing that he needs a break. I have to be careful and make sure he knows that HE is calling the shots and I am just here for guidance. We talk through all the options and the pros and cons of each. Then HE chooses the next step. I started moving some of my appointments to this evening. It hit 9:00 am and I called the Transplant team. I received a call right back directing to go to the lab to rule out some bacteria overgrowth as well as assess hydration, electrolytes and rejection medications. We had to collect a-hem….a sample….to be tested. We went to the lab. And waited and waited for ab...