I had a doctor’s appointment this morning, was able to make it home in time to pack Ethan up to get to the hospital by 12:30. He had his biopsy today. We met with his NP before hand. She was excited to share that they want to put him in another research study that will help gather more information about his heart which can help him and others. The Transplant office just got approved as a testing facility on last Friday. He is the first patient they will submit. The test Molecular Microscope Diagnostic System. It uses genetics to create a “profile” within a database. They can use the profiles from other people around the world to compare his profile to. It is supposed to help with difficult cases and supplement the diagnostic precision. It helps pick up on potentially missed rejection cases. It sounded like a good tool to collect more information to learn from. Information is power. We laughed when she said they use it for “difficult cases”. Ethan was the first person they thought...
Today went by relatively quickly. I had my grocery pick ups to do, managed some of Ethan calls about his heart biopsy and took the dogs for a run around the field. I can feel the house getting chillier day by day. We still have open windows in the bedrooms round the clock, so that doesn’t help. We are dragging our feet to turn on the heat. (This could be a NY slogan as I know I am not the only one). I can feel myself getting lazier as the days get shorter. I have been trying to do some sort of physical activity daily. The struggle is real.