😊12/23 6:25 am

It’s 4:30 am. I woke up to the repetitive dinging of the machines. Ding.....ding.....ding.....over and over again. I laid with my eyes closed but it just wouldn’t stop.  I had my ear plugs in and the pillow over my head. Ding....ding.....ding.....I popped out of bed. Ethan’s blood pressure was low and that is why it was going off. It wasn’t too low though. But enough to trigger the machine. 

Ethan’s nurses were in the room two doors down which was some sort of emergency. I saw the crash cart there that had been parked outside of our room last week. Some poor parent is suffering in their own quiet hell.

This monitor has an inside voice and outside voice.  It has a quiet ding, which is a “hey something is a little off” warning. Then it has a “THE BUILDING IS ON FIRE AND WE ARE ALL GOING TO DIE” ding.  The second one is obviously my least favorite. I think scientists have tuned it so it interferes with the human nervous system and makes you twitch a little when it goes off. It’s part of the design. What a bunch of jerks those engineers are.

When the nurses came back we discussed Ethan’s night. His lung pressures, while still high, have come down. They should be around 6-8. Ethan’s were mid 20’s yesterday. This morning they were sitting at high teens.  The nurses also said that with agitation Ethan would go from hypotension (low blood pressure) to hypertension (high blood pressure) but was able to self regulate without medication.  This is great news.

The results of Ethan’s echo from yesterday came back that his right side which was in moderate to severe heart failure has improved and is now considered in mild heart failure. Yeah!!!!! Improvement.

Two things to be thankful for already. I have already put in a request for house keeping to clean up the bathroom. Someone spit or leaked some sort of gooey fluid on the floor and the sink was nasty. I don’t even care today because at least there was some good news. Something to grasp onto and cheer for. Come on Ethan!!!!