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😬 12/25 Noon-ish

 So, they have decided to lift Ethan’s paralytic today. I am a little excited but mostly terrified. This is what they did the last time he arrested. It has been 8 days since I watched them do chest compressions. I am hoping there is not a repeat. So nervous does not even begin to explain it. This could make or break this holiday for us.

I think I am not the only one that is nervous. Everyone is approaching it optimistically as well as cautiously.

His nurse has done all the oral care, flipping and care that usually agitates Ethan. He is going to get his methadone and hopefully chill and let the paralytic wean off. 

I had a nice Christmas morning with Paul and Avery the rough the portal. Avery took over the tradition of Christmas Quiche and did a pretty damn good job at it. Go Avery!

So we are just going to “wait and see” what happens. Wish us luck. 😬


Comments

  1. Come on Ethan, you can do this! We are with you Patti every step of the way. Christmas miracle..maybe?

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  2. I'm with Debbie. I prayed really hard for this Christmas miracle for Ethan and you and Paul and Avery. Merry Christmas

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  3. I’ve been praying for a Christmas miracle. Ethan is one strong kid with your love and strength that will get him through this. Continued prayers for nothing but a good day and smooth transition. Sending hugs, love and positive thoughts. πŸ™❤️

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  4. I like Kimberly’s comment. Let’s pray for a Christmas miracle.

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  5. Merry Christmas to you and your family. Praying everyday for that sweet boy of yours. He is always in our families thoughts. Always.❤️

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  6. You've got this Ethan! Come home to us buddy, we miss you, when you are well, we are going on one hell of a jeep ride! We need you and your mom home, it's not the same without you! Get well dude!

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  7. πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™prayer is the best medicine for Ethan... slow and steady..

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