12/29 8:55 pm

The number circled in Red is Ethan’s oxygen level. Should be between 95-100.

I have had a few different people call the floor laundry is on to see when it will open again. I was hoping the squeaky wheel would get the grease. I can go back to the apartment but I get anxious being away. I hate to think Ethan waking up and not being able to communicate. I now know some of his usual requests. 

Turns out, the Health Department needs to come in and approve them re-opening. Geez, the diarrhea virus is no joke. Apparently it spreads the diarrhea virus. Ew!

Ethan hasn’t peed much today. They gave him extra diuretics too. Sigh. 

Ethan’s nurse was new today. We have not had he yet but she has come in to help a few times. She is strikingly beautiful. I was able to show her the technique another nurse used to reduce fluid collection using a specific pressure bandage. She had never seen it before and I told her I only saw it done once but we could try and if it didn’t work, we are no worse for wear. So hopefully it works. His night time nurse has also not seen the technique so I will show him as well. It seems to have helped with comfort.

Ethan is watching The Office again. This morning he had cartoons on and was restless until I turned the office on. He was a little less delirious. He just keeps getting bigger with fluid. I think the dialysis will be a “go” tomorrow for the next few “weeks”.

I actually hope it is. I am going to think of it as a treatment to help his kidneys and heart get better. Have a little rest. I am hoping this will be his golden ticket. He looks so uncomfortable so swollen. I told his nighttime nurse that if we can make it through the night without a crisis, I will forever appreciate it. He got here at 7:00 pm and has been running around ever since.

What a wild ride this kid is on. He better take life by the balls (yeah I said it) and love each day to the max (safely of course).