12/6 6:50 pm

Well, I accused Ethan’s nurse of being a witch and practicing witchery on my kid. “What kind of medication are you giving him?” I asked as I showed her a picture of one of Ethan’s pumps.  I was kidding of course. Luckily she also got a nice, deep belly laugh  out of it. I saw the number flash on the pump and thought what in the.....tomfoolery is going on here?

Ethan was NOT a fan of the decision made to stop his Versed cold turkey. He started having labored breathing and became unstable with his blood pressure. They turned it back on but half the dose it was and he seems much more stable and comfortable. 

The new plan is to wean down by small amounts on everything and see how he does. They are tweaking his medications so that he doesn’t come out of this a drug addict. That seems like a realistic goal.

One of the parents on the floor has very very poor bathroom etiquette. I saw she was here today and have avoided the floor bathrooms all together. I go to the tucked away bathroom a couple floors down. This woman brings a whole new level of awareness of how much I hate sharing bathrooms with people that aren’t my family. Luckily she usually doesn’t spend the night and only visits a couple days a week. But man, what a pig.

Ethan’s blood pressure elevates when they suction his tube.  I think he panics. I am happy that his nurse is working again tomorrow. I like her. 

Ethan has gradually started to stir. He twitches a toe, he has raised both arms but not communicating at all yet. We are down to 13 pumps. Totally going in the right direction. Fingers crossed we can continue with this momentum.