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12/9 7:30 am

 


It was a relatively quiet night. Ethan’s blood pressure is low.  His breathing tube had to be suctioned a few times. They have this tube they insert in his breathing tube to vacuum out the mucus. Then you can see it in a clear tube going to the “holding tank”. Sounds gross but it gives an idea of what is down there. Blood?  Mucus?  Ethan hates the process. He feels like he can’t breathe.

His xray I thought looked like it had some improvement from yesterday. I am not a radiologist so who knows. But I feel pretty good about my assessment.

He is in an upright sitting position today. I am happy for that. I don’t know when they will come off the paralysis medication. I don’t mind not having to tackle him.

Day 18 and we finally are seeing some gut movement. I was beginning to think he would be full of shit forever. This still may remain true but not in a literal sense. He is getting a culture done because they are concerned he has C-diff. Everyone is now in basically a hazmat suit that comes into his room.

He has a fever of 102.4.  In addition to stool culture, urine, blood and respiratory cultures are being sent out. He has no immune system to fight anything so these things are going to happen.

Today will be a new adventure.



Comments

  1. there is promise in that sunrise... and promise for a new day and as you said, a new adventure. Ethan is continuing to fight and heal. Your strength and humor continue - you are so strong, Patti.

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  2. Maybe by being more upright, Ethan will feel better about staying in bed and not wanting to get out. A change of position can always change your outlook about things. Come on Ethan, everyone is still praying you will continue to fight your way through this. We love you.

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  3. Good Morning Patti
    At least you have a beautiful view out your window
    Keep it going until the sunshines
    through to Ethan’s new day😎🤞

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  4. Glad things are moving forward for Ethan. The picture is beautiful that you took.

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  5. Poor Ethan...Is there anything else that he could have? I can’t imagine having to deal with all the machines and tubes and Ethan’s response to all of this. Patti, you are a pillar of strength. God gave Ethan to you because he knew you could handle all of this. Our prayers continue....Please God wrap your arms around Ethan and heal him.

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  6. Good luck! Ethan don’t do anything stupid please.

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  7. It really didn’t hit me till you posted it was day 18. I’m glad to see things are moving forward. Even if it’s baby steps it’s still steps toward the goal. This process has redefined patience for me. It’s so important. Great job Patti. We miss you both very much.

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  8. It is a beautiful view, just maybe that will say something about your day🌞. I’m so glad they have Ethan sitting up a bit, hopefully a little better for the lungs. Ok Ethan, what’s up with the fever? C-diff, growl!
    Another possible hiccup with the baby step but still going in the right direction. Stay strong Ethan💪!

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