Merry Christmas!

I slept in today until almost 7.  This is because one of my favorite nurses was working. She is like a little mouse doing ballet quietly around the room. I told her that she was so wonderful and I appreciated the Christmas gift of rest she gave me.

She had picked up some gifts for Ethan. She has had him multiple times.  She got him a stuffed dog because she knows he has dogs and some fast and furious hot wheels cars, well, because he’s a car guy. So sweet! I know he will love them.

Last night Ethan and I watched Elf and National Lampoon’s Christmas. Both classics. Both enjoyable!

This morning, Ethan has on TV a picture of a crackling fire and some Christmas tunes playing. When Ethan’s nurse comes in to give a medication or do something, he starts humming along with the Christmas tunes. I think that’s cute. He has no idea he is doing it.

Ethan is slightly moving even with the paralytic. I put the stuffed dog under his hand so he can feel how soft it is. It is so soft.

We think that when we turn the lights off Ethan “goes to sleep” and his blood pressure drops.  When we turn the lights on, he “wakes up” his blood pressure rises to be a little on the high side.  Which if he is cycling day and night that will help with the delirium when they start lifting some of this sedation and paralytic. 

If you would have asked me on the day of Ethan’s transplant on November 21st, if I thought we would still be at the hospital, my answer would have been no. But he’s here and I am thankful we are together.

Merry Christmas everyone. Thank you for all the support everyone has shown us. Thank you for lifting us up. We appreciate it more than we could ever tell you. 🎄⛄️❤️