1/19 7:55 pm

This is how close Ethan and I were the entire day. He slept well. If I got up, he would wake up. He had his arm around me. It wasn’t overly comfortable but we made it work.

Today Ethan had a PT/OT session with me he fell asleep afterward. He really has enjoyed knowing I can now sit in the bed with him. It is quite uncomfortable with my back, but will continue to lay with him as long as he wants.

Then Ethan’s PT buddy showed up and did a 20 minute long session with him.  We are going to set up maybe a few visits a day. It was officially said today at rounds that he is going to work on moving toward extubation in the next 10-14 days. They want his strength even better. They are going to do baby steps with the weaning process.

He will get more vent settings weaned.  He will get his sedation decreased a smidge.  He is going to get a higher dose of delirium medication. His feeds were started again at a much slower rate. They are coming up with options to get him more protein. 

Ethan very much is adamant that I stay in his bed with him so he can hug me. I am so happy I am offering him some comfort. Also, one of the doctors mentioned an interesting point, “right now he is very distrustful of medical staff. He knows he can trust mom, but he does not trust anyone else at this point.” It makes sense with all he has been through.

Ophthalmology came by and checked Ethan’s eyes. They want to continue the antibiotic but only use the ointment on the left eye. That’s progress.

Janice broke down, again. Insert eye roll here. We were heckling her. “Janice, you suck!” Luckily they were able to return all his blood before she totally quit! That’s a win.

Ethan has had a good day today. He high fives his nurse at the end of her shift. He gave another nurse a hug. Ethan’s RT buddy that was just encouraging him the other day is back. He is happy every time I see him. He is full of life. He has kids of his own. He is just a good guy.

I am happy to report with all the treatments Ethan has to have, he is always cooperative, if he is awake. 

My bright side today is progress. I am so proud of how tough this kid is.