1/23 8:05 am

He can’t put in his passcode yet, but holding his phone offers him comfort.

We had an exciting last night. In addition to watching Ethan’s blood pressure for signs of tamponade from removing his pacing wire like a savage beast, Ethan decided to be on the move.

He was holding his spritzer fan and he dropped it. I was sleeping. His nurse was sitting outside the room. She heard the breathing vent going crazy, beeping and dinging and alarming like crazy.  She rushed into the room. Ethan had turned himself so much that he was face down and disconnected from the breathing machine. His breathing tube was in tact. Wean sedation a little and this kid starts rolling around the bed like the Incredible Hulk he is.  Except he didn’t have the strength to correct himself. He was a turtle on its back. His nurse helped him over and reconnected him.  I remained sleeping with my ear plugs in and my headphones playing a soothing babbling brook sound. 

I could poke fun at my parenting skills on that one. But I am not going to because he had someone watching him and I am a much better parent when I am rested. The babbling Brooke was so peaceful. I didn’t hear a thing. 

Our super nurse brought me a coffee this morning. I am sad that she is off until next Thursday after today. We will get someone that will be good and we like, but I just click with her. I thought the coffee was so nice! It made my day.

I asked Ethan if he was sore from sitting two days in a row. He nodded yes. I asked him if he thought we should take a break from sitting today and he said no. I asked him if he is going to just push through the soreness and he nodded yes. No pain, no gain. Let’s kick some ass!