2/13 9:35 pm

Ethan had a good day today. He was able to do physical therapy, a little less than yesterday because he was sore. We did arms, shoulders, core, legs and also stretched his feet because they were hurting him. He was in his wheel chair for several hours.

Ethan got his double lumen picc line out today!!!!! Wow!  Another line bites the dust! He has an arterial line and IV catheter and feeding tube in his nose. That is it.

Ethan will be evaluated for speech therapy to help him with his voice. His speech speed is quite slow, but his thoughts are complete and normal.

The picc line was 36 cm or 14 inches long. Wow! Ethan said it didn’t hurt at all coming out.

Ethan had a leisurely afternoon. He worked more on his wooden car. At dinner he tried a little bit of pizza. I had to cut it up into teeny tiny pieces for him because he has trouble chewing still. He ate a lot of Grammy’s applesauce. He savored the flavor. Little did he know, I added some calories to it with unflavored high calorie paste. He thought it was good and he was getting triple the calories from it.

He then began going through with-drawl, with wretching and yawning and nausea. He got some medication and then continued eating the applesauce like a champ. With-drawl is a bitch and is not for sissies.

Ethan is now swallowing pills which makes life so much easier. It will help with the amount of volume he takes in and I’ll get us closer to HD dialysis.

He had his bath with his hair washed and wrapped in a hot towel, which he agrees is a wonderful feeling. 

All in all this was a good day. We have made some wonderful progress.