3/29

My phone rings......”hello” I say. How come I always answer the phone like I am asking a question? Upward inflection it’s so weird. However, if I answered it a different way, it may sound aggressive.

“Hi this is the kidney donor team calling you about your donor compatibility for Ethan.

I immediately felt like I was going over the hill on a rollercoaster. That feeling where your stomach goes into your throat.

He kept talking.  I tried to patiently listen but really just wanted to know, Yes or no? Yes or no? Why isn’t he saying if I am a match or not. “How are you today?” He asked. Does he really give a crap? I don’t really care how he is doing. I just want the yes or the no. 

“We got the results back on your test and you.....” I felt like I was on Maury Povich finding out the paternity test on one of the 26 guys that could be the father of my baby.

“You are a match to Ethan. If the time comes he needs a kidney, further testing will be required but you are a match.” 

What a relief! We can handle the transplant. We can control when he gets the kidney. I just need to stay healthy until then. 

Ethan went to OT this morning. When he got back I told him the news.

“Hell yeah” he said, eyes bright, smile on his face.  “We are the dream team.” He said! We did a high five.

Ethan did his PT today and was very tired afterward. While at PT, I was trying to reorder one of his medications. This was proving to be a debacle because we are “out of state”. Finally after the second mail order pharmacy we tried, they accepted the shipping address. Hopefully insurance helps out with that.

I also was rescheduling appointments and trying to get everyone to fit into our new schedule. I am literally Ethan’s personal secretary right now.

Ethan is really enjoying the food. Most meals he has cleaned his plate. The options seem healthier as well.

It was a bit rushed before dialysis. Luckily I scheduled in shit show time and man did we use it. Medications weren’t ready, paperwork wasn’t ready. But the nurse hustled her booty off and we arrived right on time.

Dialysis went great. Ethan did well and we even talked about that it was relaxing. I agreed. I met some of the people on staff and they seemed nice. 

We got back, ate dinner and did a bath and watched tv together. It was a nice night.