Ethan woke up not feeling overly great. Another day off methadone. One day closer to freedom from the grips of this awful but necessary drug. Fever, nausea, fatigue....all while pushing through OT, PT, school and Rec therapy. Ethan’s appetite seemed to be the only casualty today. Tomorrow things will be a little better as the day progresses.
Ethan had a few scholarships he applied for that were due today. We were able to finish up with those. Like a hero, Paul completed the FAFSA application. He totally enjoyed the experience and wishes he could do it more often(sarcasm). I am pretty sure Paul invented new swear words while filing for FAFSA.
We got the news that there was no sign of rejection on the biopsy. WOO HOO! Such wonderful news! I told Ethan that he will never have to go to NYC for his biopsy with withdrawl again.
His test came back that the small begin mass on his pituitary gland is not secreting hormones like it was originally suspected which is also awesome. We will have an MRI done in September.
Ethan had a good day today. We also got the news he has gained another 10 degrees in his left elbow range of motion. He is now at 160 and close to our goal of 180. He can do it.
This is ALL great news! So many things to be Thankful and Grateful for. Keep on working towards coming home. Love You Both!!
ReplyDeleteYaaaa!!! Love seeing his smile!!! Glad the day wasn't all bad....hoping you were able to finish your entire cup of coffee this morning!!!!!
ReplyDeleteYou look great Ethan, so healthy! 💪
ReplyDeleteWonderful news on all fronts! You guys amaze me every day. MRI not till September- wow. Keep it up so you can get out of there!
ReplyDeleteThat's a lot of great news! I'm so happy to hear that you can cross methadone off the list. It is so nice to see him getting stronger and better able to do everything he wants to do.
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Woo hoo!!!! Great news. Here's hoping that you have a good day today and that Ethan feels better than yesterday!
ReplyDeleteLove the updates 💚
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