4/19

We made it home from New Jersey. Paul was awesome and drove us down. It was so nice and appreciated to not drive. Plus I was able to multi-task and take car of a bunch of phone calls I needed to make.

 I had to get a refill on a medication for Ethan. There is a dread like no other when the pharmacist asks “is he taking any other medications?”  And the answer is yes...like 1000 of them....then they proceed to ask the name, dose and frequency of each one. Good thing I had a list and could rattle them off.....I even asked, “would you like the brand name or the generic name?” That phone call took 25 minutes alone.

Ethan progressively felt worse as the day went on. He had a wean yesterday of the last pesky drug that he was addicted to. That wean seemed to kick his butt. Fever, vomiting, headache and just overall malaise.  We contacted the transplant team and they advised to give an extra dose of his Ativan today. He will get lab work tomorrow to check all his levels. He is just resting this evening.

It’s hard to watch withdrawl. It’s like the stomach flu but a little worse. After the “rescue dose” he felt much better and began to snack. 

It feels good to be home for good. I LOVE being mask free during the day.  My phone doesn’t make me put in my password every damn time. Dorothy was right....there’s no place like home.

Thank you Zach and Julie for the epic shirt!