4/23

Today we arrived for our middle of the day appointment. I say it like that because of the inconvenience of it. We arrived at 12:15. There was some sort of emergency going on. Our nurse didn’t come over a different nurse did at 12:40. I can understand an emergency and needing all hands on deck. 

Then the nurse that came over couldn’t get the pulse ox to work. There was a lab work issue and he wasn’t sure what tubes to use. He then had to set up the machine. He was very nice but it took forever. He kept checking and double checking with another person. (which is good that he was thorough) At the other place, when we arrived, they hooked us up right away and we never ever had to wait. I know he’s a new patient here. I get it, I just want to complain because it was annoying. It’s hard to have so many hours less in your day 3 days a week. His treatment started a little over an hour after we arrived.

Ethan can’t do his homework there because he is on a stretcher and the table they have to set the computer on doesn’t scoot under the stretcher. We found this out today when we arrived with his computer and he couldn’t use it.

After dialysis was all said and done, we left the house at 11:30 and returned home at 5:15. Luckily, We got the go ahead to contact the adult Strong affiliated center to entertain at home dialysis. I will call on Monday and get the ball rolling with that.

We are heading into another wean this weekend. I am hoping it will go well. We have a “barf bucket” close by just in case.

Ethan felt a bit tired after dialysis. He came home and ate and went to bed early.

We are excited to celebrate our Christmas. Our tree is still up. Ethan loved that.

We have lots to look forward to this weekend. No appointments is top of the list.