5/31

 I woke up today and looked out at the lake. It was smooth. The sun was shining and I appreciated the gift from Mother Nature. Our first camping weekend after transplant was a success. 

Paul survived another Memorial Day with potatoes in his wine. It’s an odd tradition. We started it several years ago. Basically we sneak some sort of potato product into Paul’s wine when he isn’t looking. This year it was tator tots. This was all Avery’s doing this year. I am so proud of her. She even saved some tots from dinner and was able to get him again later in the evening. As it turns out, the more you drink, the less watchful you become of your wine glass. Avery is learning some real life skills.

Ethan’s about the same today. His appetite is down. He feels tired. Avery has been so kind to him. She does a great job of taking care of him.

He vomited again when we got home. I communicated it with his doctor to let he know what was going on. He then got his appetite back a little bit.

He had yogurt with protein powder, a peanut butter and jelly sandwich with protein powder, some cookies.....so that was good. Maybe this is therapeutic vomiting? 

Either way, we have a few appointments set up this week with endocrinology as well as the transplant team.

We tried getting more glue out of Ethan’s hair from last weeks EEG. What a disaster. We have to slather his head in baby oil. Then try and pick out the glue gently. Unfortunately, I am just not that gentle....like and elephant in ballet shoes. I think I am being gentle and then Ethan is flinching from the glue I pull out. As Ethan said “it is 2021. Haven’t they figured out a less invasive way to get the information they need without GLUING leads to your hair?” He has a point.

As we remember our veterans we have lost in battle, we are also celebrating everyone that has fought for our freedom. Thank you to the men and women and animals, that have fought for our country. Remember those that lost their loved ones to war.