🐐 6/1

I showed up to dialysis with my A game. I don’t like to brag.....wait...yes I do....I did really good. I read through the directions, followed it with minimal mistakes. Hell yeah!!!!

Ethan felt a bit better today. His tongue was feeling a little better. His canker sore is the size of Texas. Ouch! 

He lost weight over the weekend. He lost weight when he didn’t have dialysis. He should have gained water weight. But he lost weight. Which makes me a little sad.

I also forgot to make his physical therapy appointments. When I called today, they couldn’t get Ethan in until next Thursday. So we are going to do our own PT and home for the next 8 days. Tonight we went down and worked with the weight bench did some stretching and a small amount of jogging. Even Avery came down and walked on the treadmill. I want to see this kid bulk up.

We met up with endocrinology, via zoom. Ethan’s fatigue is likely not due to his thyroid medication. It is suspected that it may be from Ethan’s seizure medication. Ethan also had bloodwork done and we are still waiting for his results. I want to see how his anemia is doing.

I also had a phone meeting with Ethan’s doctor. She is the best. I have an actual zoom call with her on Thursday.

I also went into work for a few hours. I didn’t get a chance to work on getting my things together to send to SSI. I am hoping to finish it at some point this week.

We live outside the town limits. As I drive into town, I pass a neighbors house. They have a goat that wanders around. This goat is large and sometimes is a little naughty by wandering close to the road or into the field. This goat has become one of my bright spots. Today as I passed by their house, the goat had wandered in the field. Naughty goat. But it makes me smile. This goat was a bright spot.