The stupid dialysis machine went off the entire night. I ended up calling the troubleshooting hotline at 4:30 am just to get it to stoop beeping. My first technique was to ignore it and just listen to it until I was ready to deal with it. I turned our fan on because it seemed like a good ideas.Today was a work day. No poop raining from the sky today. Luckily that doesn’t happen very often.
Ethan was wiped out from his covid vaccine. I got home for lunch. I ate quickly so I could at least get some dishes and laundry done. As I was eating I looked at Ethan. He mumbled that he was extremely tired. I encouraged him to take a nap and drink some water to stay hydrated. I can take the water off later.
He actually went upstairs and went to bed. I got home a bit after 5:00. Ethan was no where around. I peeked all around the house and found him asleep in his bed, since I left him there several hours ago.
He must have been tired. He got up and was able to do a couple things. But he was totally exhausted. I sometimes still struggle with being home and Ethan is still not back to normal. Having our life back to normal.the truth is that it is a much different life than we expected, but we are getting through it.
I was able to watch the video Ethan posted about his hallucinations when he was in the ICU. It’s called ICU delirium and it is real.
Here is a link to his video:
Luckily, ethan’s delirium sounds fairly peaceful.
Tonight I had to finish up some emails and then take care of the dogs. Now it is off to bed for a nighttime slumber. If this doesn’t make sense, it’s because I am falling asleep.
Stupid machine! It seems to enjoy messing with you. Just imagine the day when Ethan will NOT need that machine. Ah..... just imagine it and smile...... xoxo
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