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11/22/21

One year ago today, Ethan took us on a rollercoaster ride full of surprises. I didn’t really care for that ride. I am hoping the next ride we embark on is more similar to a lazy river on a hot day, with a margarita.

His transformation has been un-imaginable at best.


From almost every machine keeping him alive to working on his project cars.




As parents we second guess ourselves all the time. One of my sources of anxiety for Ethan, is not being able to provide the psychological support that he needs. I think, Somehow, we will screw him up without the proper therapy.

Ethan has said time and time again, he does not want therapy. But the struggle lies in that I KNOW he would benefit from it. We had a zoom meeting with Ethan’s psychologist. He was a good sport even thought he didn’t care for it. 

He has worked through the fear and now is to the point where he just wants it over with. He is planning for the future which is great. Let’s get this show on the road. Ethan has a race car to build (and race).

And, as always, please keep our donor family in your thoughts. We are so grateful they decided to donate their organs.

Comments

  1. this journey has been unbelievable and incredible. as they say, "you can't make this sh*t up!"
    and in this case, it's true! Ethan - you are by far one of the strongest humans there is. and with a super hero family and wonderwoman by your side, you are more than supported. it's okay to open up and acknowledge feelings, even it it is not easy. many hugs and lots of love for you all ❤❤❤❤❤

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  2. One year ago..... unbelievable! Congratulations to Ethan and all of you. You have all come so very far. Remember that glorious day when you and Ethan walked out of that hospital together? Yep.... that was a great day. Hoping your next walk out of the hospital is much more lazy river, than terrifying roller coaster. Ethan- you look fantastic in these pics. Go kick some ass, you two. We will be cheering loudly from the sidelines. xoxo

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