11/30/2021

Well…so far I am not impressed. Last night We had to fight for answers and didn’t have a clear answer until 10:30 pm. We still didn’t know what the surgical morning would look like. Together? Or separate? The answer is Ethan and I were split up in the morning. I went to the adult hospital. Paul stayed with Ethan at the children’s hospital. A tornado of fear plowed through our room. Paul got a front row seat to the degree of miscommunication that happens. It’s like trying to herd cats. It’s no ones fault really. That is why it is so important to have an advocate.

I was disappointed that we were told we could wait together….but I was trekking alone to the adult hospital to wait. Good thing I am an introvert. I didn’t mind it. It would have been nice to give us a heads up on that one though. Paul had explicit instructions and I told him to call me and put me on speaker phone with the anesthesiologist for Ethan. I think the degree of separation is going to be the hardest. It could also be that I don’t like not being in control.

We had visitors from 9Tower come in last night. That was so awesome.

Paul watched as I rattled of a slew of information and rapid fire questions making sure all of my concerns were addressed. His eyes were big and he was quiet. It was nice to have him listen to me crab about my feelings.

I arrived for surgery and the waiting room was packed. The chair was uncomfortable.

Surgery came and went and I was quite uncomfortable from the gas they blow you up with.. I was stuck on a stretcher all day and between the back pain that caused and the laparoscopic gas pain….I am hating life right now. I have gotten up twice to do laps. I am hearing Ethan is doing well. They put him on 9central which is right next door to 9 tower. 🤬. At least he is close to his friends.

I am being told there are no beds and will likely ha e to stay in recovery on a stretcher with no visitors over night. How does that happen.  I hate it.