12/7/21

 Today was a slow day. Everything just takes so LONG at the hospital. I spoke to the doctor this morning. She said discharge will be tomorrow or Thursday. WHAT? WHY?

I stressed that today was what we were hoping for and tried to work out every type of scenario on how to change that projection, to today. Why? What are you keeping him for? Lab work? This is why we moved here….to be 5 minutes away and get lab work whenever it is requested. We went down the gambit of reasons and potential solutions. We were told to “wait and see”.

Noon came and went without an answer. Kristen and I were at the hospital at this point and Brian was at the apartment working. Only 2 people allowed in the room.

We were visited by a friend on 9Tower which was amazing. 

Each hour dragged on and on. Then we checked all the boxes. Our nurse said the orders were in but stalled. After my meeting with the pharmacist I was like…” Let’s get this show on the road.” We became the squeaky wheel. Within an hour we were out the door.

We could not have done this without Paul, Brian and Kristen. They were the MVP’s of this whole ordeal.

We got home and I had to settle out Ethan’s medications. I filled each little square to the brim with pills that are keeping him healthy. 

I snapped this picture as I looked at Ethan. There he was doing normal teen adult stuff. This is the “healthiest” all of his organs have ever been. He looks normal. If he was walking down the street, no one would guess he had been on a trip to hell and back this past year. Be kind, you never know what someone has been through.