1 year ago, Ethan and I finally walked out the door of Columbia and made our way to the rehab facility. We were one step closer to home. We reflected today about how long we were gone.
We have come such a long way, but there is so much farther to go.
Ethan got the call not to go into work tomorrow because one of his co-workers tested positive for covid. I am so thankful Ethan got the second infusion of covid antibodies.
As I prepared Ethan’s weekly medication tonight, I was looking at all the bottles of pills and vitamins. It has dwindled down and will continue to do so. We go back to NYC towards the end of April. We are getting closer to the 6 month mark where we can discontinue even more medications.
Ethan just got the approval to go to every other week bloodwork. That is a win. The weekly, timed lab visits sucked. If we can get a week in between….we will take it. They usually take about 14 -16 vials of blood each time.
Ethan keeps plugging along. While time seems slow for him, he has come so far. We are thankful for our donor everyday. Colie is on our minds often.
Congratulations on the one year anniversary of walking out of that hospital! Wow. You have come so far. I hope as more time passes, the nightmare of that hell eases and softens. It sounds like Ethan has a lot of wins in his favor right now. Keep them coming! xoxo
ReplyDeletea year already! That was a huge step for you both. Look how far you've come. No dialysis, 1 less kidney to worry about~
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