Happy Halloween!!!!! Ethan hasn’t been feeling so hot. He has been trying to decide if it was allergies or a cold. He took allergy medication last night and woke up with no progress. His voice has started the conversion to more of a phone sex operator sound. I reached out to his transplant team. I wanted to get a plan in place for if he came down with a fever (which can be dangerous for transplant patients). Ethan was already scheduled to go in for blood work tomorrow morning. So I convinced Ethan that while we are out, we should go to urgent care as his history of multiple pneumonia’s have laid the foundation to make me think this could turn into pneumonia fairly quickly. So after bloodwork in the morning, we will be heading to urgent care. This give ME anxiety. We have to give a detailed history of his medical past but the cliff’s notes version. THEN if they take things seriously, and decide to prescribe medications, I will need to triple check that it plays nice with his other ...
This is our family's story of Ethan's heart transplant journey