Avery came over today to go through some things in her bedroom. She made some decisions about keeping things and donating things. She found a note I had hid…who knows how long ago. It was a small business card size note with a pretty picture on it. It was an inspirational quote from Mom….just for that right moment. “When you are feeling like you are not good enough….just remember… at least you aren’t a crack whore.” We were cracking up. Wise words from Mom. That was totally planted a while ago to make her smile. I had clearly forgotten about it. It ended up making us both laugh. She pointed out that it was solid advice! I used to hide these all over her dorm room on move in day and she would find them the rest of the semester. Ethan had a dentist appointment. He had his cavity filled. He did great! Even despite his mouth sore. I spoke to the transplant team. If we discontinue the medication likely causing the mouth sore, insurance may not approve his other medication, the injecta...
This is our family's story of Ethan's heart transplant journey