I look back on the past 5 years and am thankful. Things have come a long way. We are in a stable place today. Tomorrow is a whole new day and we will deal with it then.
I think of Colie’s family. While we are celebrating Ethan’s success, they are longing for their daughter, sister, friend…wishing they could give one last hug to her.
Without Colie, there would be no Ethan. She is the engine of Ethan’s body.
I made a special dinner and cake for Ethan. Fun-getting cake with lemon frosting. Yum.
Ethan spent the evening online with a couple buddies playing a game together. I could hear them laughing and “yucking it up”. He is doing 22 year old activities and is normalish. It feels good to hear that.
I had an adult sleep over last night. This should be a normalized activity for adults. We had so much fun. We both wake up early so we chatted over coffee for a few hours this morning. Then I was off to pick up my groceries. I stopped at 5 stores and was done in less than an hour.
Ethan had his blood test this morning. From the test that have come back so far, everything looks stable.
Paul and I were looking through pictures of Ethan when he was in the hospital. Put your thumb and middle finger together to make a circle. That was how big Ethan’s ankles were. He was soooooo unwell.
I am glad he is doing the things that make him happy, even if he has to have to constant worry that something is going to go wrong at any second. We have his ultrasound appointment for the mass on his shoulder on Monday.
❤️
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