We finally received the finally word that the insurance company refused to cover Ethan’s medication for his concentration. This caused the psychiatrist to have to discuss other medications with the cardiologist and nephrologist. They gave us two options.
One had a side effect that could potentially make Ethan more prone to seizures. The other has the potential to raise his blood pressure and heart rate.
Since Ethan is driving and could hurt himself or others if he has a seizure, we chose the other. If Ethan had a seizure, the state would take away his license for 12 months. No thank you!
We have a plan to monitor heart rate and blood pressure when he starts his new medication. He will also be started on a low dose and we will monitor his liver values.
I had to put a note into the nephrology team asking them to hook me up with the transplant social worker. We need to navigate through this loss of Medicare. Ethan has the email address to his company to ask about insurance. Hopefully someone answers him to see what the next steps are.
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