2/27/25

 I found it difficult to concentrate today. I have all these ideas, thoughts and worries. I am worried I am missing something. I don’t trust this nephrologist completely. I am feeling like there is something I am missing and am unsettled.

There is just so much to juggle with Ethan. We have an appointment next week with the seizure/stroke neurologist and Ethan’s therapist.

I do feel the need to research different rejection medications, however the heart team is rock solid and I trust their recommendations. I did ask about switching nephrologists, which we still may consider. I don’t love doing that in the middle of testing as it will delay EVERYTHING! 

I feel angry that I have to take on learning all this extra stuff because I shouldn’t have to. I have an overwhelming sense of responsibility to steer this kid in the best direction.

I know Ethan’s food preferences, so I tried to come up with flavor blends that he may enjoy, but don’t have a lot of the bad stuff. Rice is going to be his friend.

I added some safe foods to my Instacart, so I can meal prep some safe meals this weekend. 

I had a great suggestion from a great person. It will help ease my mind. I am going to research the other doctors on the team and see who might be a good fit. Maybe we will jive better with a different perspective.

Tonight we were taking Nana out to dinner for her birthday.I needed to call a restaurant to make reservations for this evening. When I got someone on the phone I said “Hi, I would like to make a reservation for this evening for 5 people.”

The man on the other end of the line said “we don’t accept reservations. We only accept call aheads.”

I paused. 

I am calling ahead. Does this fit the criteria for “calling ahead” I wonder? Let me try. I breathed in deeply and out deeply.

“I would like to use this opportunity as my call ahead. Is that ok?”

Man says “sure.”

What the….? My face had a bit of an annoyed look on it, thankfully this was a phone call.

He then proceeded to take my name, phone number and he wished me well telling me he would see me soon.

I was thankful that I was able to get the result I was looking for even though I must have worded it incorrectly.

We ended up having a great meal and visit. It was nice to see them and have a nice meal together. I had a margarita. It was yummy. 😋