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11/24/25

 The responsibility I carry around regarding Ethan’s medical treatment is borderline unhealthy. I am aware of it.

The heart team wants to switch one of Ethan’s medication. I did a deep dive of side effects, drug interactions and found that one of Ethan’s needed supplements can lower the efficacy of this new drug and possibly the history of rejection medications.

I reached out to the heart team and asked if we should be worried about this or take a “wait and see” approach.

I then felt like a jerk questioning this even though I couldn’t in good conscience not ask. I asked out of curiosity instead of judgement, which helps diffuse any potential for someone to become defensive and focus more on that than the issue at hand.

I did put in my communication “if I am worrying too much about this, it is ok to tell me to take a hike!” To poke fun at my anxiety.

We have come too far . I just can’t stop. I love the heart team. I think they do a phenomenal job. But…..I need to read and dive into things for my own peace of mind.

Basically the new medication and one of the current medications, don’t play nicely. If we separate them when given, it can improve things. We made a plan to decrease as much risk as possible. I felt much better afterward.

We met at the imaging center. We went to the place close to our house. They are efficient. They scooted us into a room. They performed the ultrasound. I still wish we could have skipped this and gone to more advanced imaging right off the bat. What do I know. I am just an animal nurse. I can’t always get my way. Hard for a Leo to accept.

The appointment was quick. Zero information was shared with us which they do so misinformation isn’t shared. We will have results in a week…which seems like a long time. If her were a dog, he would have results the next day…..Maybe I should start taking him to the vet?

Comments

  1. You are absolutely NOT a jerk for doing your medical research and asking important questions. This is your son and us moms will do anything to ensure that our kids are going to thrive. Knowledge should empower us and influence better outcomes. You are doing great. Wishing for the best possible outcomes for Ethan. xoxo

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  2. I completely agree! Your dedication and continued non judgemental advocacy for Ethan is to be commended

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