1/12/26

 It was a little before 8am when the heart transplant team was reaching out to me about Ethan’s bloodwork. We are decreasing the dose of one of his rejection medications again. This is a slow process because we don’t want to put Ethan’s heart in jeopardy.

Ethan had a good point. He started a new medication after his bloodwork 2 weeks ago.  It was a stronger statin to keep his “bad” cholesterol down. His kidney values have really gone wonky in the last two weeks

I did a deep dive into this medication and found that there were some reported cases of kidney adverse reaction. We approached the team and asked what their thoughts were. The negative change was enough for everyone to take notice.

His doctor immediately pulled him off that new medication and increased the dose of the previous medication that he had done well on. I am bracing myself for side effects to appear after doubling the dose.

I was proud of Ethan for making that connection. He is thinking two steps ahead. 

I told him that he needed to really flush things out today and drink as much water as possible. We even hooked up the slushie ninja so he could have slushie and add more liquid that way. I didn’t want him to have his slushie alone, so I had one too and added tequila to it. Yum!

I also was able to have the kidney doctor add a urine test so we can see where his value is there. We haven’t had that test in a while. It should be a test with a standing order. 

This kid is a lot of work!