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3/3 ๐Ÿ˜Š

We woke up at 4 am. I am tired. Ethan was wretching. We didn’t really get back to sleep after that. 

Another one bites the dust.  Ethan got his arterial line out!  Woo hoo.  He made 5 ml’s of urine this morning. Yes! I did a dance. 

We got the news we were moving to the 6 th floor. Yeah. Private bathroom here we come. The rooms are larger there. It is where the laundry facility is located so I don’t have to do the walk through the lobby...I saved my laundry in hopes this would happen and it worked out beautifully.


There is no monitors that bing or alarm as he does not have any pumps. They are monitoring his pulse, oxygen and heart rate but I don’t have to look at it. I keep hearing that parents hate this part. I monitor him by his color and facial expression.  I think I know when he is going to wretch before he does.

After the several trips down a few floors we finally had all out things moved. Then I was trying to unpack and juggle laundry while Ethan was having me set up his lap top and find the charging cords.

Ethan started thinking about his kidney again. He is worried it won’t work and he will have a whole other ordeal to contend with. I can’t blame him. It’s scary. We left it as no matter how much he worries, it will not change anything, but he should talk about his worry. He should share it. 

Our 4 hour dialysis session started. Ethan slept through most of it. They pulled off 2 liters in today’s session. That is wonderful.

Ethan has had a few bouts with nausea. More weans were made. Ugh! I can’t wait until weans are over.

We watched a show together at our new desk. It was great!


We were visited by a good friend from 9Tower. It was nice to see her. We still miss all of our friends from 9 Tower.

We finally have our own bathroom. I was able to sit my butt on a toilet seat for the first time in several months. It’s a good day for sure.

Comments

  1. So happy you finally got a room with a bathroom!! It’s been a long time coming and you both deserve it. It’s crazy how normally you would take a bathroom for granted until you’ve been through your situation. It’s awesome to see he made some urine!! Hopefully that’s the start to much more. Get settled and enjoy your new space. We’re getting closer to having our family back together again! Love you guys!

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  2. i’m so happy that this day has finally come for the both of you! many wins all in one day and many more that is to come. worrying comes with its flusters but it’s there for the right reason. as always, you both are doing absolutely amazing. i love you both very much :)

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  3. Yay for the bathroom...finally!!! I’m so happy for you. I guess to say enjoy is not a bad thing, lol.
    A new room, bathroom, and a little more freedom for Ethan. Big day. I hope both of you sleep well tonight so you can become accustomed to your new digs tomorrow.

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  4. GREAT “GOING” GUYS!!
    This package is a big Deal
    For lots of reasons
    Sounds like all systems go
    And getting ready to move on !
    Another Big Turn in heading
    HOME ๐Ÿ 
    Big Hugs ๐Ÿค— ๐Ÿค— all the way


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  5. What an exciting moving day! Closer to laundry, bathroom, no alarms.... Patti, a month ago this seemed so far off but look what he's done! WARRIOR BRAT!!!!!! Happy dancing her in Hilton on the very muddy farm. Ethan, keep up the good work, my friend. What a marvelous example you've set for so many. Congratulations! This is a milestone! And whatever happens to finish the "fixing", young man, we'll all be here cheering you on. I have absolute faith in you!

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  6. ❤๐Ÿ’›❤๐Ÿ’›❤๐Ÿ’›❤๐Ÿ’›❤

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  7. Woo hoo!!! Cheers to another floor and a private bathroom. You both deserve this so very much. I hope today is a great day. xoxo

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  8. I think his kidney will wake up when completely weaned. It’s just drugged up. Maybe the other kidney will come out of hiding too!
    God willing all continues to go in positive directions ๐Ÿ™๐Ÿผ๐ŸŒน

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  9. Awesome news!! Hooray for getting your own shitter!!!!!

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  10. No More Pumps...this is the best news!! So happy for that๐Ÿ˜Š i’m so happy for a bigger room with a desk, laundry near by, and best of all...you’ll be queen of your own thrown!!!!

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  11. No More Pumps...this is the best news!! So happy for that๐Ÿ˜Š i’m so happy for a bigger room with a desk, laundry near by, and best of all...you’ll be queen of your own thrown!!!!

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  12. No More Pumps...this is the best news!! So happy for that๐Ÿ˜Š i’m so happy for a bigger room with a desk, laundry near by, and best of all...you’ll be queen of your own thrown!!!!

    ReplyDelete
  13. No More Pumps...this is the best news!! So happy for that๐Ÿ˜Š i’m so happy for a bigger room with a desk, laundry near by, and best of all...you’ll be queen of your own thrown!!!!

    ReplyDelete
  14. No More Pumps...this is the best news!! So happy for that๐Ÿ˜Š i’m so happy for a bigger room with a desk, laundry near by, and best of all...you’ll be queen of your own thrown!!!!

    ReplyDelete
  15. No More Pumps...this is the best news!! So happy for that๐Ÿ˜Š i’m so happy for a bigger room with a desk, laundry near by, and best of all...you’ll be queen of your own thrown!!!!

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  16. What a glorious day! No pumps and a bathroom!!!! You have earned that right to that throne momma!!!!

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