4/16

We went to dialysis first thing this morning. 5:30 am in fact.  Why you ask? Because we have been working all week to get ourselves checked out of rehab.  Everyone has agreed Ethan is ready. He has passed all the tests and has proven again that his determination has been successful. 

We have known all week this was our plan. We were like little hens all week clucking about our excitement. 

Last night as I lay awake AGAIN listening to the roommate as well as he was pushing the nurse button every 5 minutes. He pooped his diaper. Lights on. Toxic noxious smells. Having to ask to have the garbage taken out because that just isn’t common sense.

I had visions of fecal particles raining down on us. I can confidently say that I got more sleep when my kids were newborns. I knew I was not even going to miss it a little bit.

We have all of our appointments set up for next week.  The only glitch we had was finding a pediatric nephrologist. We could have left Thursday but we had to stay for dialysis. The soonest we could get in was Tuesday in Rochester with the nephrologist. So unfortunately, after much discussion, we decided to head home knowing that we will head back Sunday evening for dialysis in NJ on Monday. Then we will be home for good.

With road block after road block, and much coordinating this was the best possible solution that fit our needs and the safest for Ethan.

I ubered to rent a car in Newark while Ethan was at dialysis at 5:30 am.  We planned for an early discharge at 9am. We plan to get on the road and back to Rochester just in time for me to get my first covid vaccine. I set this appointment up earlier in the week as well. One thing I am good at is planning.

We had a leisurely drive home. We pulled in the driveway and our yard looked so nice. All the flowers were blooming. Paul had mulched and made it all pretty. 

We showed up and aggressively rang the doorbell. Avery was scared and didn’t answer the door so I texted her to answer the door. She opened the door and poof! There we were!  

I stole Avery and drove to get my covid vaccine. She listened to me vent. We had Avery text Jesney and invite her over for dinner.  

Paul came home and from the driveway called her to ask about the strange vehicle in the driveway. She said she had no idea. Paul came walking into the house. He saw Ethan on the couch. His brain had trouble for a minute processing who it was. Then I popped out around the corner and said hello.

When Jesney arrived, Avery had her come into the living room. She was shocked. Then Ethan gave her a promposal. She said yes.

I got to hang out with Ferguson and Avery.

A highlight of today is that we didn’t have to wear our masks in the car. Wow! This is a hard adjustment. I am so conditioned to wearing a mask ALL the time, I have been putting it on at home without thinking. Worrying where I left it. I put it on as I left the house to return the rental car. It is so nice not to wear it. It will be nice to be able to sit on the couch without it on.... or eat without having to pull it on when someone walks in the room.

Even though we have to head back on Sunday, we are close to beginning the next chapter. It feels so good to be home. I can’t wait to go to bed in a bed. Tonight we are on our own with medications. I am a pro. We are setting an alarm for the 1:00 am medication. I am going to bed now! I am tired!