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❤️1/25 7:20 am

 Ethan woke up asking when he was getting his breathing tube out.  He also asked when the PT guy was coming because he wanted to walk today.  He is now writing which is a blessing.  He did write “I hate this.” He is frustrated. We went down another notch on his sedation today. 

We discussed all about what needs to happen for him to get his tube out.

He totally disabled his phone. The iTunes password isn’t working and Apple support was no help. So I currently have reached out to Apple to see what else can be done.  That was its own shit show.  Still in progress.

He had a good night. I had a good night. Hoping for more progress now that we have a full 24 hours on antibiotics.

Comments

  1. steadyvtJanuary 25, 2021 at 8:24 AM

    Oh boy, do we ALL hate this. I can only imagine how mentally and physically hard this is for Ethan and that breathing tube has got to be the worst. I can't wait for that day when that tube comes out for him. We are all going to hoot and holler big time. He is so motivated right now and that feels like a great sign of great things to come. Here's to a great Monday ahead. We'll all cheering from the sidelines. xoxo

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  2. Joanne DiiulioJanuary 25, 2021 at 8:25 AM

    Woweeee
    This is such great news
    This guy means business
    Sounds like he wants to
    Charge.
    Ethan we know you Can
    and Will do this but Please
    Watch the Road getting
    around the bend ....
    You’re on the way to Win
    this Journey of a Lifetime.
    Love you 😘







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  3. LoisJanuary 25, 2021 at 9:18 AM

    he has a great attitude to get through all of this. Keep going Ethan you are doing great

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  4. DebJJanuary 25, 2021 at 10:52 AM

    I can’t even imagine what that breathing tube must feel like for him. Poor kid.
    So much progress though, baby steps have turned into longer strides now. He is going to have you jumping through hoops, lol. He is so determined and that is what you want.

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  5. UnknownJanuary 25, 2021 at 11:26 AM

    He has such a drive in him!! I have no doubt he will do all he can, and then some to get stronger and be out of there. And you will be there to slow him down when it's needed. :)

    I'm sorry about his phone, I hope Apple will help with it.


    Loralee

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  6. Sandy SillowayJanuary 25, 2021 at 12:55 PM

    Wow! The determination Ethan has is astounding!! Keep that going kid! That’s what makes progress!!! ❤️

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  7. big life in a tiny townJanuary 26, 2021 at 10:06 AM

    His phone will have to be reset by connecting to itunes. His pictures and contacts will be gone. If you want me to do it for you, I can. email me at bdemarse@lafargevillecsd.org

    ReplyDelete

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