💪🏻1/8 8:25 am

One more liter bites the dust. Yeah! We got a new Janice yesterday. She sucks. She broke down overnight. She cause an hour and a half delay.

Ethan mostly had a good night. He had two episodes where he oxygen went low, his lung pressure went up and was the start of pulmonary hypertension crisis, but crisis was averted with intervention. We need to get these lungs healthier.

It is heading towards the weekend so this is when Ethan starts to get worse.  When less people are here. Insert eye roll.

Our night nurse is off for a few days but he is back on Sunday.  We will miss him. We traded stories of our paranormal experiences, favorite paranormal shows and now I have some movies to watch. I might wait to watch them with Ethan and Avery. They enjoy the paranormal stuff. 

Ethan’s xray looked very similar to yesterday’s. His critical care doctor came in and mentioned that she wants to get him off paralysis. I agreed however was hoping to get his lungs in better shape prior, to avoid these yo yo episodes of better and worse. I didn’t want to rush. We will see what today holds.

My bright side so far today, I slept well last night.  I don’t need anymore bright sides for my day to be good.