😊 1/14 7:10 am

 Ethan had a good night last night.  He didn’t sleep the whole time but when he was awake he was calm. This morning, after xray came I helped his nurse turn him to stay off his bed sore. He then started coughing because he was getting a nebulizer.

His nurse suctioned his tube which he is not fond of.  We had to wedge something in his mouth because he was clamping down so the suction tube couldn’t be passed. After he was suctioned, he pointed. Kind of aggressively pointing. I looked to see what he was pointing at. 

“Do you see the Supra?” I asked and was so excited. This is really the first sign of recognition or communication he has given this time around off paralysis.

This morning they weaned his opioid down a tiny bit again.

Last night his cardiologist popped by Ethan’s room. I was all snuggled into bed and was playing games with Avery and Paul on my phone.

“Hey!” He said

“Hi” I was sort of confused as to why he was in our room.

“We are shutting Ethans feeds off at 2:00 am because we got an opening in the cath lab for his biopsy tomorrow afternoon.”

“Cool! Thanks. Nice job!” Woohoo!!!!!

They were hoping to scoot him in sooner so they can start weaning back on the dialysis machine.

We will continue to wean and adjust medications today and maybe Ethan will slowly emerge over the new few days. I have a feeling he is going to be mad as fire.