🚗 1/3 2:45 pm

In true Ethan form, he has progressively gotten worse. Here he goes, stepping in shit again.  His oxygen levels were sitting between 65-75 and he has a yucky blue grey color. His blood pressure went up very high and he was in the beginning of a crisis, which is the same crisis that led him to cardiac arrest on the 18 th. I pushed for a broncoscopy at rounds and the doctors wanted to give it another day. 

Tomorrow Ethan will have an echo done to assess his blood clot in his left ventricle. 

I have learned where all the stuff is in the room so at least I can be helpful handing and fetching items needed to help for the nurses.

I felt that we have had a few days in a row with pulmonary hemorrhage, let’s find out why. There is just so much blood coming out. We have given time and it has seemed to have gotten worse, so logically I thought towards diagnostics.

This morning Ethan got an X-ray vacation. The vacation was revoked. He got an X-ray and it was worse than yesterday. Like kind of a lot worse. His Left upper portion of his lung has collapsed, which doesn’t help with oxygenation. 

After trying a bunch of different things to help his lungs. The team assured me that he still needs time and lots of medical support to get through these lung issues. 

After about two hours of this intense yo yo, he is resting comfortably with normal oxygen levels, not laying on his bed sore, with The Office on (because it never gets old).

Ethan’s one doctor has parked herself outside of Ethan’s door. Just watching his monitors and tweaking. His critical care doctor is not far away. Both are within sight of Ethan.

Ethan now has gained almost a liter of his fluids back after stopping the fluid retention on dialysis. This is really because he has been getting fluids along with his medications. They have abandoned any goals of taking fluid off for today until he becomes more stable.

I am frustrated because it seems there is no end in sight for him. But I am grateful to have him. Even if he is broken. I am staying patient and not looking too far ahead. This recovery has been a continuous zig zag from point A to point B.

“What is the bright side?” I have been to the bathroom a couple times today. I have seen the mom from the room next to mine. Her baby is small and new. I remember being in ICU with a baby with heart difficulty. This poor mom has had her baby in surgery  for at least 6 hours now. I am glad I am not in those shoes. It can always be worse.