Today has been a day of healing for Ethan. The team agreed that they are going to slowly and carefully start weaning some things. Ethan has been holding steady.
I got the green light on the frequencer three times a day. No one seems to want to do this because it is time consuming so I am just taking it over. I can watch the clock and feel like I am helping. The nurse and I paired the frequencer with Ethan’s inhaled lung treatments and maximized the yuck she pulls out. There is no active bleeding. Yeah!
We have been nursing Ethan’s deep tissue injury and really making sure he says off his tushy. Ethan now has a wound care team that is making sure the wound doesn’t get worse or infected. When the wound care team came they told me Ethan is still the most critical kid on the floor.
Janice has been happily working away. She hasn’t even gotten a good talking too in a little over a day. Knock on wood.
Ethan also got his feet scrubbed and lotioned because they were so dry.
I have become a glutton. My back is hurting which means I need to do more exercise and core strengthening. Motion is lotion. All the stairs are locked. You can get in them but you can’t get out except on the ground floor. Other floors you need a badge. I didn’t want to commit to all 9 floors so I had someone find a route on some stairs to get my heart pumping that didn’t require a badge. I am hoping to work my way up to all 9 floors down and 9 floors up. We will see. I am super out of shape.
I am so very thankful that we had a good day today. I was not afraid something bad may happen if to dart out of the room to go to the bathroom. We all know I would not lollygag in there. If I wanted to poop in the park today, or in between parked cars I would have taken my time and not worried about rushing back. I decided it was too cold for that nonsense.
I would love to continue this momentum we have had today. Can he please have a break for a few days? It is nice to be able to breathe for a minute.
One baby step in front of the other. You both managed to go around the pot holes today. I feel like we are all collectively holding our breath as he creeps forward one little win at a time. Prayers and hugs to both of you. Love you both! Hope your night goes well too.
ReplyDeleteThanks Mom ❤️
DeleteReading your posts puts me on the roller coaster with you. I will sleep much better tonight. I love how you circle back to previous posts. This is very therapeutic for all.
ReplyDeleteThank you.
We are trying to get better so we can get up to the islands this year.
DeleteWow! Productive day!!! Rest, healing and progress! I think you need a margarita!
ReplyDeleteI'm very happy to hear that Ethan had a good day! And I legit laughed out loud at the poop comment. That's the Patti I know! You guys are fantastic. Here's to more restful days.
ReplyDeleteAnd you can totally do 9 flights of stairs! I've done 9 flights every winter for the past few years, and I might be older than you. It's hard at first, but I know you can do it! And reaching the top is a solid feeling of accomplishment. Full disclosure: I haven't done more than 2 flights of stairs since the weather got nice last spring 😉 so I'll be huffing and puffing when I finally get back to it...
My butt isn’t too sore today so maybe I will attempt it. Thanks for the encouragement. Nope! I haven’t matured at all.
DeleteWonderful news. ♥️
ReplyDelete👍👍💜💜💜
ReplyDelete2 thumbs up still a good move forward. Awesome..
🙏🙏🙏🙏🙏💜💜💜💜💜
Hip hip hooray!!!! Let's keep this going Ethan! We are rooting for you buddy!
ReplyDeleteThank you!!!
DeleteKeep up the great work, both of you. It is so nice to have a day where things are moving forward. I’m glad you can relax a bit. You deserve it. Love you ❤️❤️❤️
ReplyDeleteJust catching up; I’m so glad you both had a better day today. I love the logo...no need for tweaking, it’s perfect!! I bet Ethan will love it! I hope you both have a good night and you are able to get some rest. I can’t imagine sleeping with all the beeps and noise from Janice. I go insane just with Scott’s snoring lol.
ReplyDeleteI love the logo, it’s perfect!
ReplyDeleteSo happy today was a day of rest and healing. I hope you are eating, haven’t heard much about that.
You are doing a great job, we can’t wait to tell Ethan what a wonderful, strong and loving Mom he has❤️.
Sleep well and we will baby step together into another day of healing tomorrow.
I am so amazed by you Patti! What an amazing Mom you are. Some times we live life year by year, moth to month day by day....and even minute by minute...you already figured out the key to these tough times.....find joy in the smallest thing...coffee, non-sticky bathrooms, sunshine and flipping the bird to hell. It's perspective. My best to you and yours.
ReplyDeleteThank you. I am just trying to survive with some sanity
DeleteKeep going! I know you can do it Ethan!! ❤
ReplyDeletePatti- words can't describe what I feel when reading your posts. All I can say is God bless you both and keep up the positive march forward...Sending Prayers to Paul and Avery too.
ReplyDeleteThank you! ❤️
DeleteThank you for not pooping in the park. The dog walkers would be affronted! And oh my stars, I am happy dancing for you to have a series of better hours, moments, times... and to have Ethan hanging in there for treatment. I think you both could use a breather, and if Janice is working, nothing's clotting and Ethan is peeing, then that's a positive.... and hence the breather. We want working systems, and when we can get them to work together, as a unit, Hallelujah chorus will be sung! Praying for all four of you, and that Ethan is covered with God's grace and care as his body works to identify and cling to a new normal for healing. Thank you so much for the update!
ReplyDeleteI almost started hyperventilating reading this ha ha
ReplyDelete