The picture is just because Jiminy is so cute. We got Ethan’s results back today. His tacro level (rejection medication) is high. It is frustrating because it keeps yo-yoing between low and high. We are making micro doses to his medications and it seems that these small changes make his level go from low and unprotected to dangerously high. We can’t seem to find the sweet spot.
Because his tacro is high, it has elevated his kidney values. So no matter how much Ethan drinks, he can’t seem to lower it with his fluid intake. We continue to monitor every other week because he isn’t regulated.
I am looking forward to this weekend and seeing our friends. It will be much needed friend therapy. Next week we have a trip to the neurologist. The appointments are slowing down, so that is a bright side.
I am frustrated for you and Ethan. I'm sorry. I wish all this medical stress could disappear in your lives. Keep on swimming.... AND have a great time with your friends this weekend. Love you!
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