Today we drove to NYC. It’s that time again. Tomorrow is a busy day. A day Ethan walks into Columbia Children’s Hospital, smells the smells, hears the noise, sees the familiar halls that he walked over and over again.
The trauma of just walking into the building is intense for him. The car ride the day before appointments is intense for him. Today was no different. However, I noticed a change in Ethan today. He chatted off and on the entire trip. This was WAY better than last months trip.
Tomorrow will be a LONG day of lab work, appointments, echo, EKG, meeting with nephrology, meeting with cardiology and my own bloodwork….THEN a 6 hour drive home….then back at work at 6 am Thursday. It will be a BUSY 24 hours.
Ethan has also mentioned he is getting tired more easily. I do get concerned when this happens. I am curious what his cbc says. I am worried he has become anemic again. Of that is the case, we will deal with it. More moves and counter moves.
Wish us luck!
Thinking of you both today and sending lots of wishes that it goes nice and smooth! Hopefully you'll get thumbs ups on everything being checked. xoxo
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