24 Hours ish Post Surgery

 They took Ethan back to surgery.  His night was full of his blood pressure dropping, the team giving him fluids and blood product and the times between those episodes decreased.  They had to take him back to surgery. They suspect the lap sponges in his chest are causing pressure on the new heart as well as they think he may have a blood clot around the ECMO machine that is helping his new heart pump blood.

I was able to sleep a bit surprisingly.  I am physically and emotionally drained.  

Typical Ethan fashion, this is not how this is normally supposed to go. “We don’t typically see this response.”  I KNOW! This is how he does things. They are worried. I am worried.

His chest tubes are draining a lot of blood still, which is abnormal. He has been getting some sort of blood product around the clock. 

I am now sitting here hoping he doesn’t arrest again. He has been completely sedated and unconscious since his phone tantrum.  His face is so swollen from all the fluids, he is unrecognizable.  He is so pale. His lips are the same color as his face. It’s hard to see your kid in this state for sure. 

I trust the team is doing everything they can for him. These people have been hopping ALL NIGHT. Can someone give me sedation please?