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5:45 pm Update

 All of the machines helping Ethan right now.





Ethan is having bouts of his blood pressure dropping and the ECMO machine gets upset because it isn’t able to move the blood fast enough. It have never seen such a rush of people to a room in my life. There were 8 people urgently communicating what to do with the several medications he is on. The one doctor says “what are you doing buddy?”.

He has an elevated blood glucose which could be due to the massive amounts of steroids or the trauma sustained getting the new heart.  They discovered some bleeding but did some imaging and were able to change some things up and get that under control. His lung has not gotten worse.

He has been unconscious since his agitated response to his phone. They cranked him up on his sedation. They had to put in another IV in his foot. He continues to get multiple bags of blood product (which has reminded me that I need to start donating more than I have  in the past).

His machines will alarm and then the team picks their next approach. It’s like a strategic game of chess. These nurses need a raise. 

He is getting lab work hourly now. His kidneys seem to be working ok.  He did have a period where he didn’t produce urine as much as he should. It seems they are play a game of moves and counter moves.

I am tired.


Comments

  1. You must be exhausted. Please try and get some rest. You have seen the medical staff at work. He is in good hands. Food, you need food. I know you can eat. Get some food.

    Hugs,
    Cheryl and Tom LeConey

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  2. We are ALL sending you hugs, and prayers for him. He is definitely in the best possible place to get the care that he needs. Keep going Mom. You are doing a GREAT job!!

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  3. Thank you everyone. I am eating. At some point I will shut my eyes and put some ear plugs in to get some sleep

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    1. If you need anything I will drive it down to you! A book, lasagna anything! I hope you can get some rest today.

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  4. Thinking of both of you in NYC right now and Paul and Avery back home.
    Prayers sent to everyone as he is a tough kid and u a tough mama...🙏🙏🙏

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  6. Thinking of you and sending you so many prayers for continued strength and healing for Ethan. You are so incredibly strong, remember to take care of yourself as well.

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  7. We are all praying for you and Ethan. Get some shut eye. A little nap every couple of hours will help you cope with all of this. How you manage all of this I don’t know. You are a strong lady Miss Patti

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  8. We are all praying for you and Ethan. Get some shut eye. A little nap every couple of hours will help you cope with all of this. How you manage all of this I don’t know. You are a strong lady Miss Patti

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  9. We are all praying for you and Ethan. Get some shut eye. A little nap every couple of hours will help you cope with all of this. How you manage all of this I don’t know. You are a strong lady Miss Patti

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  10. Sorry don’t know how it posted three times.

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  11. I work for the Red Cross and I myself have not donated blood in awhile (tooth problem) I will for Ethan ASAP! I coordinate blood drives! I see this and I just think holy shit people need to get out there and donate! Thank you for the reminder! I am so amazed by your families strength! I will continue to pray!

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  12. We love you guys so much! Take good care of yourself even though you don't want to move or breath or blink I'm sure. Ethan's so strong and so are all of you.

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