We made it home.

Stripper pole?

View from our hospital room.

It was so bright.

This must be a sign that things are going to be ok.

They

 Last night we were finally moved to a regular floor.  It was so much better for Ethan.  We had a really nice view, private room WITH A REAL BATHROOM, and a desk area which was good for both of us. We had a really cool view.  We shut off all the lights and were standing in the windowsill just staring out over all the lights dancing in the distance.  We were trying to guess what some of the tall buildings were.  We watched ambulances zoom by and the lady with the white dog marching up and down the street.  The white dog crapped in the street and the lady was a good owner and picked up the mess.  After all the sight seeing from tower 6, I went to step down from the window sill.  I was in motion. Ethan started to panic and yell " watch it! Watch it!  Watch it!" It was dark.  What was I watching for? Momentum was in place.  Science took over, gravity had it's way with me. I stepped off the windowsill right onto the IV line hooked directly up to Ethan's picc line.  His bent over towards the ground and made a bad noise. It was dark.  I couldn't see! OMG!...I just pulled out his picc line. 

I may have yelled out a series of bad words. "OMG are you ok? I am sorry! I am sorry! I am sorry!" Words that rushed out of my mouth almost incoherently. "Yes I am ok." he said.  I flipped the lights on and felt like I was going to throw up all over Ethan and his ruined picc line.  "OMG! ARE YOU OK?" "MOM! I am ok, I saw it happening and bent down."  I looked at his arm and the most I did was remove some of the dressing. The nurse was able to tack down the dressing and he was good to go. I didn't stand in the window sill after that. 

We had a restful night with minimal interruptions.  We also used the Portal last night so Ethan could hang out with Jesney.  Jesney's mom, Yesenia, also chatted with us and hopefully didn't burn her soup.  Thank you for letting us borrow that Nana and Papa.  

Ethan's lab work is holding steady. The doctors are pleased.  I also inquired if Ethan has an active Lyme infection if that will change his listing status and the answer is.....NO! Such good news. Ethan was enjoying that he wasn't stuck to the all the monitors. He is tethered to a pole that he was joking was his stripper pole.

While Ethan was in class this morning (online learning) as soon as he logged in the Zamboni floor cleaning machine was plowing up and down the hall.  The hall didn't seem long or wide enough for how many times the machine went by.  It was loud.  It was loud like a hurricane. Every time Ethan's teacher would start to ask a question, the Zamboni  would hurricane past the room. Ethan was so pissed. Then a nurse came in and had to do an EKG during his lecture. Ethan had to lift his shirt up and his pant legs so he could get all the appropriate stickers.  He said it was so distracting and interrupted his learning for sure.  This is hospital life.

Today was soooooo longggggg. It took forever to get Ethan's prescription pump as well as his medication. The home care service had to come and show us how to use it (insert eye roll here).  It arrived late.  Then we waited 2 hours to get discharge papers. Deep breath.  Our Uber driver was the best.  I made sure to give him a fat tip.  He basically helped us load and unload all our bags and new boxes of all sorts of equipment.  He also helped us to the apartment building door.  He was entertaining as well.

We then had to quick eat because the traveling nurse had to come to make sure we were all set up with all the monitoring equipment we needed.  He needs to document his weight daily.  Take his meds, keep his dressing dry, flush his unused lumen on his picc line every 12 hours with two separate flushes, and carry his backpack around everywhere he goes. Our kitchen table is littered with medical supplies.  He also got the coolest pill holder for when he gets his transplant and is on 500 different medications a day (being slightly dramatic).

It feels good to be back at the apartment.  The pigeon ate the little treats I left for it.  I will put more out and maybe we will see it tomorrow.  The noise at the apartment is better than the noise at the hospital. We are thankful to be in our little safe spot. And now.....we are watching Schitt's Creek.