12/17 1:45 pm

 

Ethan has been motionless since his big “tantrum” this morning. The more and more I think about it and talk to the doctors, I am so thankful if this was bound to happen, it happened here. Ethan stepped in shit this morning. 

As Ethan’s nurse left this morning, late, because she was doing chest compressions on my child. I stopped her. “Thank you for saving him.” 

His new nurse came into her shift right in the middle of the shit show. This poor nurse has been hustling and bustling with lightening speed ever since. What a way to start your shift.

They have determined that his severe pulmonary hypertension caused him to go into crisis with the agitation from the X-ray. Once he was agitated, his oxygen levels dropped. His blood pressure dropped, but lung pressure remained high and he went right into cardiac arrest.

They were able to print out his EKG from the exact moment to see what was happening before as well as after so we can avoid this from ever happening again.

Ethan’s lung has collapsed again after compressions. Luckily we had the before and after X-ray to determine it was a direct cause of compressions. Luckily I found out his incision was in tact, it was his open chest tube holes that were draining out a bloody-ish material with each compression. Phew, but really what a mess that made.

One of the specialists consulting on the pulmonary hypertension is one of the “best in the world” apparently. So I think it is safe to say he has the best mechanics working on his engine.

I think it has been noticed that Ethan is a sick kid. His “sick” on the inside doesn’t reflect how good he looks on the outside. His heart and lungs are very fragile and they need to be cognizant of that and be equally as gentle when adjusting things. 

I think it is safe to say Ethan will not be getting his breathing tube out any time soon. That’s ok. We are just going to take this slow and steady. I think the doctors are starting to realize I wasn’t full of it when I told them he was difficult.

I had a chat with Ethan.  It was just he and I in the room. I told him that he was doing so good and trying so hard to heal. I told him that I would really like to never go through that again. I told him that I would appreciate less dramatic ways of him getting attention. I hope he listens.

I think about what a crazy story this kid has.  He has endured a lot! He has much more on the path ahead of him.

Time for him to start smelling like a rose agin.