The neurology team came by and said that nothing big showed up on the CT scan. Phew! Neurology was worried Ethan may have a brain bleed because he’s now not closing his right eye either. If he had a brain bleed, they would have had to do emergency surgery. However, he is paralyzed so it could eventually resolve itself when he is able to move. Finally this kid offered some great news!
There were very minimal changes today with Ethan’s medications today. They are just stabilizing him.
We are back up to 14 pumps. I could be disappointed but I am thrilled. I am glad I have a kid here that needs pumps. Yesterday for a period of time my child died. It has provided a uniquely intimate perspective.
I was behind someone in line at the cafe. She was having a fit they ran out of yogurt. A huge fit. Who cares. Pick something else lady. Go home and be thankful your loved ones are still around. Step back and look at the big picture. My kid is still with us today.
Ethan Will at some point go for an MRI to further investigate his brain. They may find stuff they don’t want to.
So many people have been reaching out, sending gifts and love. Thank you all. We so much appreciate all the thoughts, prayers, texts, calls, cards and everything. Taking time out of your day for us is so thoughtful.
Another day of healing, and the beat goes on.
Yah for having a kid here who needs pumps! 😃
ReplyDeleteYou are the strongest person I know. Keep fighting, Ethan! ❤️
ReplyDeleteThere are people every where pulling for you and Ethan. Your journey is inspiring, frustrating, happy, sad, scary, and unbelievable all at the same time. How in the world can one child have so much to deal with at the same time. It just doesn't seem fair. Prayers are flowing your way everyday.
ReplyDeleteMay Ethan’s Guardian Angel
ReplyDeletebe by his side to hold him, help him
And kept him safe and calm !!
We have an Army of people
Praying 🙏🙏for Ethan coming
from Everywhere
Lord Please hear our Prayers🙏🙏
And Keep Ethan safe
I'm just left speechless after every update. I don't know what to do, I dont know what to say, my eyes have this watery substance that blurs my vision that makes typing a response that much more of a challenge. I know this may sound crazy, as we all barely know each other, and I'm not going to pretend that our families were "besties,, or super-close" or any of that fake stuff. But we are neighbors with kids around the same age and both Kyle and Matthew like Ethan a lot. But every night since I've become aware of Ethan's transplant, he is on my mind , constantly! I wake up in the middle of the night, .. and my first thought is,, I'm wondering what he is going through. When I work an early shift, I get up and read your updates (with some coffee of course) before I do anything else. I check them before I go to bed,, to make sure I didn't miss anything.. When Ethan is recovered, you may have to find some time to still blog about something.... you definitely have a gift. I'm impressed with Ethan's strength and determination, but Im not surprised. But I am in complete awe of the strength and confidence you and Paul have. It's amazing. I can see where Ethan gets his courage from. We are thinking about you all, all day, every day.
ReplyDeleteDitto.❤️
DeleteThank you Dave.
DeleteI think you speak for many of us. I read all day..think all day..talk about it all day...but most of all I pray..all day.
DeleteThank you. It keeps my mind busy or I would be going crazy.
DeleteI agree with Dave on all counts... The amazing strength and the bestie part and the writing part. I find I'm going to sleep praying for Ethan and all of you and I wake up, still praying. Thank you for being you. For being strong. For being his sentinel, his guard, his person in waiting, standing watch. And God bless Paul and your daughter because I know how hard that role is, too... someone working, taking care of child and house and pets and paying bills... And you are being lifted up in prayer by a bunch of absolute strangers who've been following this story. God bless you. And may He bless those caregivers and professionals with insight into what's gone wrong... and how to achieve the flow of normal that allows the body to heal on its own. Stay strong, warrior. Stay strong.
ReplyDeleteSlow and steady wins the race. ❤️
ReplyDeleteI don’t comment on all of these but I do read them all. We couldn’t have the drive we have with out all of the support we’ve received from everyone. Thank you all! Ethan has shown he’s gonna do this his way but he will get it done.
ReplyDelete