Ethan went to get a CT scan to see if the cardiac arrest caused any issues in his brain. The way this kid has been I am holding my breath a little. I feel like I need to be on my toes to catch anything he throws me. No one likes to be hit in the head because they weren’t paying attention.
Today at rounds, they decided to take things VERY slow and wean down some of his medications. Hopefully slowly enough that his fragile system can handle it.
His doctor described him as a “problematic case”. She said he got her attention and she is listening. Teeny tiny little movements in his medications for today and just see how he does. At least one more day of paralysis.
So today was mostly a day of rest. Ethan’s PT car buddy stopped by. He ordered Ethan a 1/24 scale of his car. A 1983 Toyota Supra. He wanted to get a bigger one but apparently the company only made a small number of them and there were none available in the world. This sweet man even called Japan looking for one of these.
He came by with a print off (car pictured above) and said that he wants to use it as a motivational tool for Ethan to get better. Isn’t that so nice?
Ethan is going to LOVE it. I feel like it’s going to be forever until Ethan will be well enough to process this information. So I will just be waiting by his side until then.
Problematic is not the term we mothers want to hear when it comes to our kids and life and death.... but I'm sure he's a puzzle. And yet, holding on. I'm glad they're restarting the process and going slowly because he is throwing the wall at them and seeing if they can reconfigure what's out of sinc.
ReplyDeleteSo maybe part of the question is this: Is it Ethan? Or is it the new heart? Which one is throwing a physiological tantrum? Is the body defying the new organ in its own way or are things still out of sinc between him and the heart, like when you put a new radiator in an old car and the hoses are used to the old radiator and they don't like the pressure of the new one, so one by one the hoses crack or blow or just get ornery.
And if it's more than one thing, or one thing causing a host of others in a domino effect, then it's tough to say which one is causing what reaction. So in the meantime we pray for healing and the body and heart to settle into one another, shake hands, fist-bump, whatever... and make friends.
But it sure is a mystery, Patti.
Praying for a good night for both..
ReplyDeleteI have a hockey helmet for you if you want to borrow it when Ethan throws stuff...
stay strong. I know your running on adrenaline for your baby boy..
You go Ethan baby steps towards recovery buddy..💜💜💜💜💜😷
Slow and steady. The PT guy is sharp. He is thinking what Ethan needs to get motivated. Good for him. K
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