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12/18 8:30 am

 We had a steady night. Blood pressures remained steady. Lung pressures remained steady. Ethan’s heart and lungs are working.  Already it’s a better day than yesterday. I don’t know what the plan is for Ethan today.

I know that what ever it is, it has been carefully planned with many smart brains. Speaking of brains, Ethan’s EEG was finally finished. Good news! He has brain activity. 



I did Ethan’s physical therapy this morning already. I have to move his fingers, toes, wrists, ankles, knees, elbows shoulders and hips. It’s a process. I apply his special boots that I have now dubbed his “stroke boots”, to position his feet and legs and prepare him for less muscle memory loss for when he starts walking.  I also put on his “stroke wrist splint”.  That helps to keep his fingers in the correct position. These are to help the reduced mobility on his left side.

I was second to the shower, yet still first. The lady before me took a perfume bath. Fluffed it all around the bathroom and walked out. I patiently waited (truthfully it was only sort of patiently). When she came out I walked in and suffered a minor choking fit. My lungs were burning.  I had to stop, drop, and roll to catch my breath.  It was trapped in my mask.  I thought I was dying (I am being dramatic). It wasn’t quite that bad but wow!  It was a lot of perfume.

It will be interesting what Ethan’s plan will be heading into the weekend. 

Comments

  1. So glad Ethan had a good night. Slow but sure, he will come around. Take good care of yourself so you can continue to be that great Mom.

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  2. Okay Ethan..,
    Behave yourself today and every day ahead., Yoir Mom needs and deserves that Gift from you!!!
    Keep steady, on Track
    For healing !!!!
    We’re waiting and praying for your smooth ride back Home to us.
    We love ❤️ you soooo much!!!

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  3. Good morning Ethan! It's time to show your mom, doctors & nurses how strong you are. Today is going to be a good day! Fight harder! We love you very much!

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  4. So glad to hear everything is moving forward. Again Patti you are doing an amazing job, Ethan is so lucky to have you. Ethan keep plugging away, we love you!!

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  5. Ethan amazes me, as do you Patti! I don't know Ethan except for seeing him in his ICU bed surrounded by machines and from your photos. I watched his YouTube videos this morning. I admire him for following his passion, communicating his fears and thoughts pre-transplant and expressing it to help others. He's absolutely adorable, smart, witty (like his mom) and very strong! I think of what I've been through with Justice's health and feel like we've had a walk in the park compared to you. (I know it's not good to compare)... but just sayin' you are the best with an incredible attitude. Thanks for sharing your blog with us all.

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  6. I'm still digesting the perfume bath.
    Give me a minute.
    Nope, still at that small restroom area, the single shower, the choking smell.... scorched lungs.... :)
    Well, that's a wake-up call for certain.
    This is a better report to find. I hate that his road is rocky and I'm praying for that even keel, for them to be able to stabilize reaction vs. over-reaction of the body so that God's peace just kind of settles over him.... washes over him.... and let's the body heal and adjust. Lifting you both on high right now and always.
    And tell him he's a brat.
    Just do it.
    I'll apologize at a later date. :)

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  7. Thinking of you Patti...everyday. You are truly one of the strongest people I have ever known. I have gotten to know your incredible son not only through our conversations at work but mostly from all the posts and videos. I know he can do this.... one tiny step at a time...but he will do it.

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  8. πŸ§ΌπŸ€’πŸ¦ πŸ›€πŸ’œπŸ’œ

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