Ethan struggled overnight still with delirium. They upped his one medication that is supposed to help with that and may have to start the second one. Being bed bound is literally driving him crazy.
I got a nice warm and friendly hug from the apartment shower this morning. Quiet. Clean. No one knocking on the door. I just needed an escape from the noise. Now when I am alone, in a quiet spot, the world sounds muffled. I think I may be going crazy (I think that started at birth). No, I am a functional crazy.
I do feel guilty when I leave. Ethan is somewhat awake, cycling through trying to get out of bed and then napping. I just needed a break. I gave myself permission to take a break from this 24/7 job.
I ate dinner last night with Jayne, the mom I met recently whose son had a transplant the end of October. We maintained our distance and properly sanitized the table first. It is nice to talk to someone that has been through the trenches of this ruthless battle.
Ethan is still making progress weaning off the breathing machine. Today I am working on stretching his feet and legs along with his left arm that needs a little “fine tuning” in the shop. We are really going to emphasize the day/night schedule. They told me to make sure his surroundings seem familiar. So I have his favorite shows on Netflix during the day for him to listen to.
His water blanket got popped again. The water blanket is something that helps keep Ethan’s temper Patrice stable. He keeps getting these fevers and the water blanket gets turned on and pumps cool water on a “blanket” that he lays on. This is Ethan’s dream come true and probably will want one for his bed at home.
The radiology technician slides the film box under him and snags it and all the water goes everywhere. The lady felt so bad. The nurses then had to change Ethan’s entire bedding and is a huge pain in the ass. This marks the second time one has popped.
Hopefully we will have another day of successes and less episodes of delirium.
Happy Birthday Gene!
So glad you talked with the other Mom. That is great support. Keep up the great work!!!
ReplyDeleteWe're glad that you are getting some alone time to revive yourself. Keep these baby steps going forward. Hope the apartment gives you a peaceful haven. You and he are never far from our minds.
ReplyDeleteLove you! Gene says Thanks!
Patti one thing that Is EXTREMELY
ReplyDeleteImportant is that you take care of yourself!! So happy that you are relaxing in the Peace and quiet of your apartment ,,Scenery change from Hospital surroundings is needed.,
Ethan needs you to be well and sane!! So happy you found
someone at the Hospital
Who truly understands and knows
Emotions of this ordeal!!
God works in times that we feel He’s forgotten us .. But HE knows our needs and gives you strength .
Just listen
We are holding you and Ethan in our Hearts 💕, Mind and Prayers🙏
Feel our Hugs and know how very
Lucky Ethan is to have you as his Mom!!
A nice calm, clean shower... that’s awesome. You need to do it more for ur self so you can be there for Ethan later down the road in his recovery..
ReplyDeleteHe will want one of those water blankets. ( or not because it will remind him of this ordeal) But a water bed is a wonderful thing.. just don’t pop them.. o what a mess u’ll have. Hahahahahah
Stay strong, collect ur self and he is in good hands. On the road to getting that breathing tube out and then look out, u’ll be in trouble...
Prayers to you both.. and Paul too...💜💜💜💜
Thanks for the updates, they keep me from freaking out... I want him home, but you know all about that... love you all... thanks again stay safe say hey to your mister for me, thoughts and prayers.
ReplyDelete