😢 12/2 4:45 am

 Imagine you shut your eyes for the night, all tucked in on your Pizzahut booth, vinyl bed, only to in an hour later be awoken to mass chaos. MASS CHAOS! Four nurses in the room working feverishly twisting on and off their syringes so fast, giving this medication and that medication.  Multiple Alarms going off like tornado sirens, so loud and obnoxious. Ethan somewhat thrashing in his bed.

I jumped up to rush to him. “Ethan it’s ok, you need to settle down.” I look in the hall. His surgeon and main cardiologist are both there.  They aren’t usually around this time of night. That’s not good.

They are discussing what to do with him.

Ethan’s cardiologist comes in and said “What? Did he think the plan was too boring?”  Hey, I gave them plenty of warning about this kid.

They gave Ethan the paralytic medication again.  This will happen for the next few days.

There has also been talk of taking him back to surgery and placing him back on ECMO for a few days which is kind of devastating  because it is such a step backwards. Having another surgery and opening his chest back up would just suck. If it helps, then that is what we need to do.

As the night progressed, he stayed quiet. He had one episode where his oxygen drops dangerously low.  At one point it was 12%. His skin and lips turn a pale blueish grey.

He now has 17 pumps. Today is going to be a wait and see day. They applied plastic covers to his eyes to make sure they stay moist.This poor kid. Come on Ethan, time to get better.