💝Rounds this morning shed some light on things. Ethan's white blood cell count is going up so they are going to combat that with a change in the antibiotic regimen. Cultures are pending. Ethan's nurse got lots of yuck up today. At rounds it was discussed that tomorrow might be the day that one of the four chest tubes comes out. Wow!
They also want to wean on the paralysis medication. I asked them how much they valued the other chest tubes as they still have not found a good sedation that keeps him from trying to pull at his tubes and keeps him from trying to gout out of bed. The lady just looked at me and said "all the tubes have value." We discussed the sedation protocol for Ethan and how it still needs to be a little stronger to keep this kid from doing something stupid. It's not his fault, he isn't in his right mind.
The doctors were pleased with the xray this morning. Nobody wants to come in his room with him possibly having c-diff. It was pretty quiet this morning. Just myself, Ethan and his nurse mostly. I liked the quiet. I was able to log in to work and get somethings done.
Ethan is getting an echo to see how his heart is doing while running the show by itself. They want to make sure that his right side is holding up ok. He is still being paced at a rate of 130 to help reduce arrhythmias. This will be tested periodically. The medication he is on for that isn't working the best but they are still hopeful that the arrhythmias will stop as time goes on and medications are weaned back.
Ethan is going to get out his femoral A line this afternoon. Yeah. Take stuff away. Do it while he is sedated and paralyzed. That is another day of healing he will have before registering it mentally.
It has been one month since we have left Rochester. What a crazy month. So much has happened. Hopefully we will be out of this joint in another month or so. Then Ethan and his new heart can gain strength and live a lifestyle like a regular teen during covid.
This month has flown by. Probably seems like a slow process with all of the waiting you have been doing. And will continue to endure. But the end result will be miraculous and so worth it! I continue to pray for healing for you both.
ReplyDeleteagree with Sandy - it's been fast, but wow it feels so much longer. And that's just to us here back home praying and routing for Ethan and you. I can't imagine how long it feels to you, Ethan (if he's aware), Paul, and Avery - and the Diiulio Animals.
ReplyDeleteGoing in the right direction Ethan!
ReplyDelete“all the tubes have value." 😂
I hope you both get to enjoy more quiet time!
ReplyDeleteI enjoy your humor.. I guess that one didn't get it. Still praying
ReplyDeleteAll tubes matter. And that's as politically correct as I intend to get! Hang in there, Mama.... and I can't believe it's been a month.... And yet, what a month. Full healing. Sooner rather than later. And in God we trust... Thanks for the update!
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